RAREfest22 is the world's only rare disease-inspired festival attracting an audience of stakeholders alongside the public. Festival-goers listen to expert talks, watch films, interact with around 25 exhibits, hear powerful patient stories and mingle with those taking part and others attending.… Read More RAREfest22 – At the forefront of this event are the patients themselves! The post RAREfest22 – At the forefront of this event are the patients themselves! appeared first on FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network ..read more

It doesn’t matter where you live in the World when you are given your fibromyalgia diagnosis, one of the first things you want to know is where to get information that you can rely on.… Read More International Fibromyalgia Awareness Day – Happy 8th Birthday to FibroFlutters The post International Fibromyalgia Awareness Day – Happy 8th Birthday to FibroFlutters appeared first on FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network ..read more

Our site is currently old and sporting some posts that need attention. We need to get rid of dead links and update everything. Redevelopment and rebranding is essential to us moving forwards.… Read More Redevelopment and rebranding underway at Flutters and Strutters The post Redevelopment and rebranding underway at Flutters and Strutters appeared first on FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network ..read more

Real-World Evidence 2022: Rare Diseases and Innovative Therapies will unite healthcare stakeholders to discuss and advance agile strategies for accelerating collaboration and patient focus in a post-COVID Europe.… Read More Real World Evidence Live: Rare Diseases & Innovative Therapies The post Real World Evidence Live: Rare Diseases & Innovative Therapies appeared first on FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network ..read more

This week I was lucky enough to attend the 'Patient Centricity and Collaboration Global Congress 2021, Europe, that was held in London on 8-9th November. By Paradigm Global Events, that was held in London on 8-9th November. The last time I attended such an event in person was in October 2019, in London. In this article I discuss it, my experience and share the messages that I took with me.… Read More My experience – First face-to-face event in 2 years! The post My experience – First face-to-face event in 2 years! appeared first on FibroFlutters Patient Advocacy Organisation | Chronic Illness ..read more

Patient Engagement Day! Did you miss it? The webinar and patient video links from Patient Engagement Day can be accessed in this post. Including our CEO of FibroFlutters Carole who was really honoured to be asked to participate. Putting patients at the heart of the drug development process to deliver value and improve outcomes On… Read More Patient Engagement Day with Prime Patient – Did you miss it? The post Patient Engagement Day with Prime Patient – Did you miss it? appeared first on FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network ..read more

Taryn is delivering the Ataxia UKs medical guidelines to her GP in Sunderland for the campaign. Educating doctors is important to help this rare condition, ataxia, get recognised. Knowing about the disease can help people with symptoms to get noticed sooner... and diagnosed quicker.… Read More Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21 The post Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21 appeared first on FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network ..read more

The PFMD network is making sure to aggregate existing knowledge and tools, identifying good practices and coherently combining them before designing accessible and useful avenues for the various audiences that will use them.… Read More Patient Engagement With Patient Focused Medicine Development The post Patient Engagement With Patient Focused Medicine Development appeared first on FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network ..read more

Starting on September 28 and 29, AIMed will go live with a weekly series of high quality content. Shorter, more focused sessions available to view for free live or on-demand.… Read More Clinician Series is back with a Fresh new format – AIMed The post Clinician Series is back with a Fresh new format – AIMed appeared first on FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network ..read more

Do you have Irritable Bowel Syndrome (IBS)? Irritable Bowel Syndrome can be quite debilitating and many members of FibroFlutters have been diagnosed with it. To help people understand the condition better, and raise awareness, I share this video and information leaflet. The intense pain leaves me pacing and then writhing, and pacing and writhing…. …… Read More Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis The post Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis appeared first on FibroFlutters Patient Advocacy Organisation | Chroni ..read more