My body is rebelling yet again
CF Happens
by cfhappens
2w ago
Last Monday sharp pain started on the right side on the front of my chest. I carried on with my transplant appointments on Tuesday. The pain got worse as the week went on. I powered through our very busy weekend with friends in town. Sunday morning I sent the “white flag” message into my CF ..read more
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6 Month Transplant Check Up
CF Happens
by cfhappens
3w ago
I had my 6 month check up for pre transplant today. First stop was labs. I only needed 2 tubes drawn which is nothing compared to past appointments and she got it with one stick which is nice Next up, chest X-ray. Labs were all within normal limits. Chest X-ray was unchanged. It noted my ..read more
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CF Clinic day
CF Happens
by cfhappens
1M ago
Today was clinic day which are long days but I’m used to it. I’m a professional waiter after all these years of all day or half day appointments. First stop is always pulmonary lab to do lung functions. Today my FEV1 was .87L/32%. The last time I was in clinic in October, they were 34 ..read more
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Trikafta…4ish Years Later
CF Happens
by cfhappens
1M ago
I have many friends that have benefited so much from Trikafta with an increase in lung function and a better quality of life. I’m so happy for them! Many have even been able to stop doing breathing treatments. Many call Trikafta a “miracle drug” because of the changes in quality of life. I know for many ..read more
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Another year down…many more to go!
CF Happens
by cfhappens
2M ago
I made it another year! Today I turn 44!! As you know, I’m not like most women, I actually LOVE my birthday and getting older. Growing up I tried not to think about the life expectancy number because I chose to live my life to the fullest and get the most out of life. I ..read more
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My lungs are a$$holes indeed
CF Happens
by cfhappens
2M ago
My awesome cousin had this shirt made for me because I always say my lungs are assholes. I love it of course. I told her she will have to make me another one when I get a new set of lungs that says, “MY LUNGS ARE SECONDHAND.” I crack myself up. Haha. That’s all for ..read more
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Perimenopausal or not…
CF Happens
by cfhappens
2M ago
I had a follow up with my gynecologist today regarding my hormone levels. They did a vaginal ultrasound which showed that I have a few uterine fibroids (growth in or on your uterus). If you don’t know, uterine fibroids are more common in black women in their 30’s and 40s. They are NOT cancer. Birth ..read more
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Side effects from Reclast infusion
CF Happens
by cfhappens
3M ago
I had the Reclast infusion last Monday the 11th. My chest started feeling tight and wheezy that night. The next day my shoulder joints and lower neck started hurting/aching. Then by about Thursday or Friday my left thigh started having a burning feeling in my femur. My shoulder joints and lower neck were still hurting/aching ..read more
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Life update (osteoporosis and perimenopause…oh what fun)
CF Happens
by cfhappens
4M ago
I hope everyone had a great Thanksgiving. Mine was fantastic! I thought I’d update on a few things since I finished the oral Cipro and prednisone. I am feeling better than I was when I started the antibiotics and prednisone. I’m coughing less and wheezing less thankfully. I do still have to frequently push my ..read more
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Well that didn’t last long
CF Happens
by cfhappens
5M ago
I waved to white flag this morning and contacted my CF nurse to ask for antibiotics and prednisone. Sunday I woke up with a bad headache at 4am. It was on the top of my head and in my forehead. My sinuses in my forehead are basically non existent now possibly from all the surgeries ..read more
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