JAMIEBUG CF CEPACIA LUNG TRANSPLANT
168 FOLLOWERS
Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung transplant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day.
JAMIEBUG CF CEPACIA LUNG TRANSPLANT
2y ago
I don’t really post much here on my blog, but I really should. My last post was celebrating turning 40...lol that was a few years ago.
I found so much healing and peace when I was writing regularly. My transplant feels like a lifetime ago yet I can still recall so many details. Life goes by so quickly yet memories can continue slow dancing in our heads and it feels like time stands still.
I watched Salt of my Soul... The part when she was diagnosed with b cepacia, I watched as her doctors OVER REACTED and made it feel like it was an early death sentence. I was diagnosed wit ..read more
JAMIEBUG CF CEPACIA LUNG TRANSPLANT
5y ago
Almost 40!! In about 2 weeks I will have the honor of turning 40! I honestly can't believe it. When I was growing up I watched many of my fellow friends who also had Cystic Fibrosis pass away at very young ages. . I hoped to live in to my young adulthood. I never really planned to go to college or get married because deep down I understood that with Cystic Fibrosis I would not need to worry about "life". I never gave up, I never stopped making plans, and I accomplishing goals I set for myself. I always knew in my soul that I was very blessed to have such an amazing childhood and many of ..read more