Cerebral Palsy Awareness Day Winners
Cerebral Palsy Daily Living
by Paul
2d ago
Today, March 25, is the federally recognized Cerebral Palsy (CP) Awareness Day! We are excited to announce the winners for our third annual CP Awareness Month photo contest. In February, we began accepting submissions in three categories that we thought were important to represent our community: around town, diversity and celebrations & holidays. Each of the following submissions were selected by being the top three photos in these categories in votes out of 14,236 counted: First Prize Winners ($100 each) Around Town Diversity Celebrations & Holidays Levi taking big boys step ..read more
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Cerebral Palsy Awareness Month 2024
Cerebral Palsy Daily Living
by Michele S.
1M ago
Join the Cerebral Palsy (CP) Research Network in our activities to celebrate National CP Awareness month. This recognized month is a great opportunity for us to create awareness about living with CP for the general public to help fund research, support disability policies, and to promote inclusion. There is so much you can do to help the community: In February, we launched our 3rd annual CP Awareness photo contest for your favorite picture in each of three categories on our website. We will be awarding a total of $1,300 in cash prizes to the winners on national CP Awareness Day – March 25th ..read more
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Artificial Intelligence and Cerebral Palsy Research
Cerebral Palsy Daily Living
by Paul
1M ago
  Dr. Vesoulis will be leading the webinar on the use of Artificial Intelligence in Cerebral Palsy research. Next Monday, March 4, at 8 pm ET our MyCP webinar features Zachary Vesoulis, MD, MSCI who will describe the Cerebral Palsy Research Network’s initial exploration into using artificial intelligence (AI) to make new discoveries in cerebral palsy (CP). Dr. Vesoulis will discuss how we are planning to apply the AI concept of “deep learning,” a model that processes information similar to the human brain. This method would be applied to both our CP registry and brain images to predict ..read more
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Research CP Awarded Investigator Publishes on Speech and Language
Cerebral Palsy Daily Living
by Paul
1M ago
Congratulatoins to Dr. Allison whose research, funded by the CP Research Network, was recently published in the American Journal of Speech-Language Pathology. We are thrilled to congratulate Kristen Allison, PhD, CCC-SLP on her recent publication, “Relation of speech-language profile and communication modality to participation of children with cerebral palsy,” in the American Journal of Speech Language Pathology on January 12, 2024. This is the twelfth publication for the network and, is the result of research funded by the CP Research Network for its Research CP grant program in 2019. It pr ..read more
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Cerebral Palsy Awareness Photo Contest 2024
Cerebral Palsy Daily Living
by Paul
1M ago
Last year’s Best Overall winner: Dawn McKeag: Slam dunk! In advance of Cerebral Palsy Awareness Month, which runs each year throughout the month of March, the Cerebral Palsy Research Network is introducing the third annual Cerebral Palsy Awareness Photo Contest to highlight the lives and experiences of community members living with CP. The contest invites members of the community to submit up to five photos photos that depict their day-to-day life, adventures, challenges, joys, and journey. The CP Research Network has opened its gallery for submissions ..read more
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Mindfulness: A Key to Wellbeing in Cerebral Palsy
Cerebral Palsy Daily Living
by Paul
1M ago
Emily Hornsby, on the left, is a mindfulness instructor and Tracy Flemming Tracy on the right, is a healthcare inclusion specialist. The Cerebral Palsy Research Network and its partner, the National Center for Health, Physical Activity and Disability (NCHPAD) will offer a MyCP webinar on mindfulness next Monday, February 12 at 8 pm ET. The practice of mindfulness, a type of meditation, is easy to learn and is proven to reduce stress as well as provide other wellbeing benefits such as relaxing the mind and body. NCHPAD healthcare inclusion specialist, Tracy Flemming Tracy, OT, PhD(c), will gi ..read more
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Adult CP Studies Featured in AACPDM SIG
Cerebral Palsy Daily Living
by Paul
2M ago
On Tuesday, February 6 at 4pm ET the Cerebral Palsy Research Network will be giving an update on some of its adult research efforts at next week’s meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)’s Special Interest Group (SIG) for Adults and Aging. This virtual meeting entitled “Research Updates in Adults with CP “ is open to the public and typically includes a blend of adult clinical providers, nonprofit advocates and members of the community. The presentations will include updates from two of the CP Research Network’s projects including our Adult Researc ..read more
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Webinar: Imaging as a cerebral palsy biomarker
Cerebral Palsy Daily Living
by Cori
2M ago
Doctors Gelineau-Morel and Shaikhouni are pursuing an imaging database extension to the CP Research Network registry to enable the discovery of biomarkers. The Cerebral Palsy Research Network registry has more than 8,000 patients and an associated 5,000 brain magnetic resonance images (MRI) with those patients stored at the hospitals in the network. Network investigators are working to develop an imaging database extension to the CP Research Network clinical registry so those brain MRIs can be used as biomarkers – biological findings to identify or predict a disease or condition – to initial ..read more
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Happy New Year! 2023 in Review
Cerebral Palsy Daily Living
by Paul
3M ago
As we turn the page on 2023, we look back with much appreciation for all that our extended community is doing to accomplish our mission of improving the health and wellbeing of people with cerebral palsy (CP) and their families. Many of you have engaged in the work of improvement in care and new knowledge generation through creation of or participation in studies. We thank you all for your efforts, your willingness to share ideas and resources with your colleagues and researchers, and your unrelenting drive to make life better for people with CP. We kicked off the year with an impactful strate ..read more
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New CP Research Network Publication on Adults with Cerebral Palsy and Chronic Pain Experience
Cerebral Palsy Daily Living
by Joyce Trost
3M ago
Dr. Cristina Sarmiento is a rising young investigator in the CP Research Network with her first network publication and an Accelerator Award granted in October. She focuses on issues of transition and adults with cerebral palsy. The Cerebral Palsy (CP) Research Network congratulates Cristina A. Sarmiento, MD and her co-authors[*], for the publication of her CP Research Network manuscript, “Adults with cerebral palsy and chronic pain experience: A cross-sectional analysis of patient-reported outcomes from a novel North American registry”. The Disability and Health Journal released this peer r ..read more
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