Spoonseeker - Life With Too Few Spoons.
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Blogging about ME (myalgic encephalomyelitis) & related issues The condition is also known as CFS (chronic fatigue syndrome) which causes all sorts of confusion
Spoonseeker - Life With Too Few Spoons.
3y ago
This is the second in a new series of posts about medically unexplained symptoms (MUS). The first of these, A Morass of MUS, appeared last time. However, I first looked at medically unexplained symptoms over two years ago in a post called Medically Unexplained Assumptions. In this, I travelled all the way back to the ..read more
Spoonseeker - Life With Too Few Spoons.
3y ago
The last time I blogged here back in May, close to the start of the pandemic crisis, I wrote about the pending reassessment of the ME/CFS NICE guidelines and suggested that the chance of the recommendation of graded exercise treatment being withdrawn was only slender. Truth to tell, I really had no idea what the ..read more
Spoonseeker - Life With Too Few Spoons.
4y ago
I know you have enough to worry about already with the pandemic situation the way it is, but there is something else important that you should know. The sad truth is that if you get COVID – 19 and survive, it could just be the start of your problems. Ever since we first heard of ..read more
Spoonseeker - Life With Too Few Spoons.
5y ago
Sorry! – there was a significant error in yeterday’s post. The corrected version is here. Advertisements ..read more
Spoonseeker - Life With Too Few Spoons.
5y ago
Sorry! It seems there was a significant error in the original version of this post. The NICE Pathway for CFS/ME was actually produced in 2014, not 2019, which makes me wonder why I’ve never come across it before! Anyway this invalidates about half of yesterday’s bullet points and makes me realise I shouldn’t really write ..read more
Spoonseeker - Life With Too Few Spoons.
5y ago
Here’s another post written not by me but by Couch Turnip, who originally left it as a comment on the previous post ‘The Cult of MUS‘ (which was also written by her!) As so often with the stuff she writes, I thought it deserved a wider audience. It seems to summarise very powerfully the shortfall ..read more
Spoonseeker - Life With Too Few Spoons.
5y ago
This post (in response to a new paper promoting the use of CBT for IBS) is by my colleague Couch Turnip and originally appeared as a comment here: http://www.virology.ws/2019/04/15/trial-by-error-crowdfunding-week-2-and-more-sharpe-and-chalder/ (with some changes by the author) For those who are new to this issue and may be unfamiliar with some of the acronyms, MUS – Medically Unexplained ..read more