CFS Remission
486 FOLLOWERS
Striving for true remission of CFS, chronic Lyme, FM, IBS etc. Striving for remission of CFS by the alteration of a dysfuctional stable microflora (gut bacteria) that may be the cause of some auto-immune conditions
CFS Remission
1w ago
A question was ask – are there significant gender differences with ME/CFS. A partial answer is possible from our citizen science data (Available here). The number of bacteria identify as statistical drops because we are reducing sample sizes. The table below shows the shifts that are seen in common with P < 0.01.
For Symptom of ME/CFS
Source
Tax_name
tax_rank
Male
Female
Male_Chi2
FeMale_Chi2
thryve
Thermodesulfobacteria
phylum
increases
increases
234.0375
138.4544
biomesight
Verrucomicrobiaceae
family
increases
increases
8.333333
7.262051
biomesight
Rhodothermaeota
phylum
increase ..read more
CFS Remission
1M ago
In the family dealing with ME/CFS we were very fortunate in working with now retired folks, (links to MEPedia pages on them). It was 25 years ago.
Byron Hyde MD, Canada
David Bell MD. US – Created the Bell disability scale for ME/CFS
David Berg — I hosted several online chats with him. He is now retired
Transcript of Townhall with Dave Berg, Hemex Labs, (#1)
Transcript of Townhall with Dave Berg, Hemex Labs (#2)
Dave Berg – CFS Radio Program 1999-08-29
Also we had significant interaction with
Cecile Jadin MD, South Africa – by email. Still practicing
Garth Nicolson Ph.D. US – I was ..read more
CFS Remission
2M ago
A reader that does microbiome analysis of her ME/CFS daughter ‘s microbiome using Microbiome Prescription expert system sent me this note with some literature.
Your wonderful system recommended beta-glucans [also written β-Glucan] for my daughter, and when I looked further, I found this. I’m trying her on them for a month-, after testing her for reactions for three days- the first week has been hopeful. Will keep you posted if you wish.
Reader
β-Glucan is a nonstarch polysaccharide having documented health benefits and industrial applications. It can be extracted from various ..read more
CFS Remission
3M ago
This is a guest post.
I have occasionally had Nicotine show up in microbiome prescription suggestions. I have tended to skip it because that usually implies smoking -- not a healthy choice. A person recently share their recovery story (below - as written by them) using Nicotine Patches, not smoking. It is an interesting aspect that I had not considered before.
My Journey to complete remission
Updated June 2023
#TheNicotineTest
Twitter: NickChambers2
ME/CFS
Diagnosed in 2015 – 8 years ago – Possible Glandular Fever.
Vax injury (AZ)
2021 – 2 years ago – Moved from ..read more
CFS Remission
3M ago
After I posted List of Bacteria significant for ME/CFS from the shared samples uploaded to Microbiome Prescription, several readers asked “How do I use this”. This took me a few days to come up with, code and implement an answer.
I wanted this to go beyond just ME/CFS because there is a huge variety of symptoms and co-morbidity seen with ME/CFS. After testing and tuning the algorithm, I am pleased with the current results.
The process is show below.
The Steps
First get a suitable microbiome test done (See this list of supported tests)
Transfer or upload your results to Microbiome Prescr ..read more
CFS Remission
3M ago
The following are a selection of informative videos to get better informed
NIH Pathways to Prevention: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Day 1)
NIH Pathways to Prevention: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Day 2)
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – (12 October 2022) Australia
The mysterious disease that affects millions of people worldwide | DW Documentary
Pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)–Dr. Anthony Komaroff Mass MECFS & FM Associ ..read more
CFS Remission
3M ago
The following are videos of talks on ME/CFS siblings: Long Covid
COVID Comics: Decentering White Narratives in Graphic Medicine During the COVID-19 Pandemic
Neurological Complications and Sequelae of COVID-19
NIH-FDA COVID-19 SIG: NIH RECOVER Initiative: Early Findings and Other Emerging Long COVID Science
Contemporary Clinical Medicine: Great Teachers: The COVID-19 Pandemic: Looking Back and Looking Forward ..read more
CFS Remission
3M ago
This is from donated samples on microbiome prescription that have been annotated with diagnosis or symptoms. See this post for how these were calculated. All items are with P < 0.005 (10 times more significant than many published studies).
Bacteria Name
Rank
Shift
Deferribacteres
phylum
Seen too often
Thermodesulfobacteria
phylum
Seen too often
Hyphomicrobium aestuarii
species
Seen too often
Rhizobiaceae
family
Seen too often
Gluconobacter
genus
Seen too often
Erwinia oleae
species
Not seen as often as expected
Actinobacillus porcinus
species
Not seen as often as expected ..read more
CFS Remission
3M ago
The vast majority of papers were repeats of prior research (earlier research was in 1992 for some topics). The following were more interesting:
Understanding, diagnosing, and treating Myalgic encephalomyelitis/chronic fatigue syndrome – State of the art: Report of the 2nd international meeting at the Charité Fatigue Center [2023]
An Explainable Artificial Intelligence Model Proposed for the Prediction of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the Identification of Distinctive Metabolites [2023]
“The metabolomics of C-glycosyltryptophan, oleoylcholine, cortisone, and 3-hydroxy ..read more
CFS Remission
3M ago
For more information on this project see Health Rising post. Both participants has granted me to do a review with their real names. This is the second of a series of posts on this project, the first one was on The Remission Biome Project: Tess Falor.
Connected with review, you may wish to read Dr. Jadin’s Current Protocol for ME/CFS – Microbiome Prescription Blog, parts are being consider for incorporation into the Remission Biome Projects
The earliest use of antibiotics for treating ME/CFS that I am aware of, dates from the late 1990’s with articles in Journal o ..read more