DNA Digest
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DNAdigest is a not-for-profit promoting efficient and secure sharing of genomics data for research. DNAdigest works to promote and enable easier and more efficient sharing of genomic data for research. We educate and engage the community about the hurdles and dilemmas for data sharing as faced from the perspective of stakeholders in academia, industry and patient communities.
DNA Digest
4y ago
Could you please introduce yourself and your current role? My name is Laurence Woollard, I am the founder and director of On The Pulse Consultancy. We are a relatively new start-up that provides independent expert patient insight into living with the rare bleeding disorder, haemophilia, to the UK healthcare sector with the aim to improve ..read more
Cambridge Rare Disease Network Summit: rare diseases are rare but rare disease patients are numerous
DNA Digest
4y ago
On the 23rd of October, Robinson College of the University of Cambridge hosted the 3rd annual CRDN summit. The summit brought together patient groups, healthcare professionals, academics, researchers, biotech companies, and the pharmaceutical industry in a spirit of collaboration, innovation and passion to re-imagine and re-invent the Rare Disease patient journey. The meeting started with ..read more
DNA Digest
4y ago
Tim Guilliams is the CEO of Healx – social enterprise with the focus on drug repurposing for rare diseases. Tim will be speaking at the BioData World Congress in Hinxton on 2-3 November 2017. Photo source: Tim Guilliams’ archive Could you please introduce yourself and tell us about your main activities and roles? (Both at Healx ..read more
DNA Digest
4y ago
Dr Natalie Banner is a Policy Adviser at the Wellcome Trust; she will be speaking at the BioData World Congress in Hinxton 2-3 November 2017. Could you please introduce yourself and tell us about your main activities and roles? I’m Dr Natalie Banner, a Policy Adviser at the Wellcome Trust and part of the ..read more
DNA Digest
4y ago
20 October 2017, Cambridge Our third invited speaker for 2017 is Dr. Ruchi Chauhan from CRUK, with the talk: “‘CRUK’s vision on Research Data Management and Sharing” Ruchi will talk about the importance of data sharing to improve patient benefit from a funder/charity’s perspective, and how to overcome barriers to data sharing encountered by researchers ..read more
DNA Digest
4y ago
Written by Spencer Gibson, PhD, Research Associate at the University of Leicester. The DataSharing 101 site aims to be a launching pad for anyone interested in sharing data for biomedical purposes. The site started life as part of my work in Prof. Brookes’ research group at Leicester University, when working on the Genomic’s Clinic of ..read more
DNA Digest
4y ago
We are happy to announce that on 1-30 September 2017 we will be offering a 50% discount on the book “Perfect DNA” by Manuel Corpas. Get your copy of Perfect DNA What if a genetic test told you how long you will live? Anyone can have his or her genome analysed today. But no one ..read more
DNA Digest
4y ago
Dipak Kalra will be speaking at the BioData World Congress in Hinxton 2-3 November 2017. Could you please introduce yourself and tell us about your main roles and activities? My name is Dipak Kalra and I am the President of the European Institute for Innovation through Health Data (i~HD). I am also a Professor of ..read more
DNA Digest
4y ago
The post is originally published here and is reproduced with permission. I have spent 15 years in academia and industry, created a startup, and am running a second one, dedicated to the progress of health and well being through the analysis of our DNA information. I have come to realise that the issues are technological ..read more
DNA Digest
4y ago
It gives us great pleasure to invite you to our 2nd Guest Talk in Cambridge on the 7th of July at 7 pm at the Red Bull pub on Barton road. Our guest speaker is Dr Amy Tang from EMBL-EBI. Originally trained as a mouse developmental geneticist, Amy is the curation and training lead for ..read more