De Morbo Sacro
202 FOLLOWERS
The adventures of a non-medical doctor "of something" with refractory epilepsy.
De Morbo Sacro
3d ago
I had one of those productive-but-frustrating appointments on Thursday morning, the kind that leaves me bristling with resentment in the moment but settled into a better, more balanced place a mere thirty minutes or so later. As I won’t stop internet (and real-life) shouting in recent weeks, I’m in the middle of a huge developmental ..read more
De Morbo Sacro
1w ago
For the good part of a year, I found it hard to believe that I was home. Funny, then, that I’m going to celebrate the end of that year by sleeping in a bed not my own. The difference, of course, is that for the first time in what feels like forever, a night away ..read more
De Morbo Sacro
2w ago
Now that I’ve started taking showers in the shower rather than supine in bed and am thus able to wash my hair the old-fashioned way, I’ve become, for perhaps the first time in my life, open to the possibility that expensive shampoo, conditioner, and styling goops might make a difference. To clarify, I in no ..read more
De Morbo Sacro
3w ago
I’ve been awaiting this day for months with a curious mix of over-the-top excitement and nervous anticipation, proud and pumped but not wanting to jinx myself. Exactly a year ago, I was discharged from the hospital. That’s right: today marks a year since I’ve been an inpatient. A year without an admission. A year without ..read more
De Morbo Sacro
1M ago
I’m not sure my husband is particularly happy about the consequences that my latest accomplishment (and, in some ways, the greatest one besides the obvious stuff such as, you know, surviving) will have on his ability to enjoy the night without getting soaked in second-hand water. Yesterday evening, I showered in our shower for the ..read more
De Morbo Sacro
1M ago
A few weeks ago, I wrote about a medical issue I was experiencing. (I password protected the post because I wanted to err on the side of caution re disclosure of specific health-related information. If you want to access it, shoot me a message.) At the time, a full resolution seemed imminent, and I was ..read more
De Morbo Sacro
1M ago
The longer I’m home, the more I appreciate monotony. Before I continue, let me provide a bit of clarification. In my head, I distinguish monotony from boredom (although there’s beauty in that, too). Rightly or wrongly, I’m not a huge fan of monotony’s duller cousin. Boredom is hours dragging on with little to break them ..read more
De Morbo Sacro
2M ago
Although I met G by a stroke of pure luck, our friendship now seems as meant to be as anything possibly could. She and my husband were participating in the same forum at their place of work when they discovered their mutual connection to epilepsy—she lives with it, and he lives with me. After asking ..read more
De Morbo Sacro
2M ago
Over time, my right foot has slowly loosened up (as I’m striving to in life in general). When I first started rehab, it hardly moved at all, but with much work, some coaxing, and a few Botox injections, it began flickering a little and then bending a bit. Eventually, I reached a kind of compromise ..read more