Love at the grocery store
Calvin's Story
by
2M ago
On most days I take Calvin to the grocery store. It's one of the few places he seems to tolerate and perhaps even enjoy. He smiles on the way in and on the way out and a little in-between. He stares at the florescent bulbs above the produce case. He pats the crinkly plastic wrapping. Though he can't steer it, he pushes the cart but sometimes lets go and stands in place for no apparent reason. Despite my attempts to thwart his efforts, he too often licks the glass doors in the dairy section. He tries to bite the metal shelving. Then he gives me copious hugs in the checkout aisle. On most trips ..read more
Visit website
Precious notes from friends
Calvin's Story
by
3M ago
I'm writing from Italy, today the sky was crystalline blue, the sun was warm, autumn leaves astonishing. I can’t do anything to avoid your suffering but I'm sharing today's sky with you. —Near Milano, Italy This feeling of paralysis comes over me every time I read your blog. I first came across it after my sister met you somewhere. I'd been curious about Calvin for a long time; I often look in on your husband's photo blog and had seen the photos taken at some big city medical facility and then I got to see Calvin in real life at his school. Reading it overwhelms me and grinds my thoughts t ..read more
Visit website
Hurricane force
Calvin's Story
by
3M ago
When running I almost never think about Calvin. It's my worry-free, angst-free, stress-free, un-calvin-centric time, and it's good and healthy and fun for me.   But on yesterday's 8.5-miler, as it rained like hell, and gusts up to 50 mph lifted and pushed and tossed me, I thought of Calvin and of how he does the very same thing to me. And I thought of this gorgeous poem written by a mother of a child not unlike mine, and of this time in Florida thirteen and a half years ago when Calvin was six and a half and when we could more easily take him places because he was not impossibly restles ..read more
Visit website
On running
Calvin's Story
by
4M ago
A little less than two years ago I began running in earnest for the first time in my life. My dear friend, Olympic gold-medalist and world-class marathoner, Joanie Benoit Samuelson, knowing that I had once been a division I swimmer, had been asking me for years, "When are you going to get back into the pool?" and, "You know, swimmers make good runners."  I had long lost interest in swimming for fitness, in doing lap after boring lap despite how good my body felt moving swiftly through the water. But I was desperate to feel like my former athletic self. More so, I pined for an escape, a re ..read more
Visit website
Recent dealings
Calvin's Story
by
5M ago
a sick child. a string of painful restless nights for him. rude awakenings. too much missed school. the surgery to remove our dog smellie's melanoma. too many tiffs requiring apologies and forgiveness. a mass shooting in a nearby tight-knit community—eighteen people dead. the shooter's car and body found a mere mile from michael's studio. conversations about gun violence and gun safety measures. conversations about suicide and its reasons. softly schooling myopic, well-meaning people who think suicide is somehow a selfish act rather than unimaginable suffering. steadfastly countering other peo ..read more
Visit website
Dear friend
Calvin's Story
by
5M ago
now i will be strong for you. i can. you will stay in my thoughts and you will shine. i know. focus on the little things. the smell of your coffee, the feeling of the sun on your face. the wind in your hair. the quiet of a back road. the taste of clover and salt in the air. the warmth of a loved one's hand. the feeling and sound of the ground under your feet ... tarmac ... carpet ... tile ... wood ... rubber ... linoleum ... sand .... grass. the happy din of knives and forks on a plate. the rich taste of dark chocolate. the sound of bees and birds and brooks—even the memory of them. the color ..read more
Visit website
Sixty
Calvin's Story
by
6M ago
Despite the fact that nineteen and a half years of stress, sleep deprivation, and frustration from raising Calvin has likely shaved a few years off of my life, in my mind, spirit, and most parts of my body I still feel thirty-six. Regardless, I woke up this morning entering my sixtieth year of life, and though the wee hours of my birthday began with a restless Calvin suffering from some sort of pain, from my perspective—one in which I try to practice gratitude, even for the mundane—life still looks decently rosy. That fact is a testament that we humans are resilient as shit, most of us able t ..read more
Visit website
Rough patch
Calvin's Story
by
6M ago
A fortnight ago, Calvin completed nineteen weeks—three and a half months—without having any seizures. It was an all-time record. It's not hard to remember a time not that long ago when nineteen days would have been a record, and even nine days seizure-free was considered pretty good. Sadly, the next day Calvin suffered back-to-back grand mals amid a low-grade fever. Four days later he tested positive for Covid despite not having any significant respiratory symptoms. It might sound strange to you, but I was actually relieved to know that he had Covid, which meant at least there was a knowable t ..read more
Visit website
Get ready to cry
Calvin's Story
by
7M ago
Long ago, my brother Scott forwarded an email to me. On first glance, it appeared to have been one of those chain emails that I loathe receiving, the ones that, at the end, tell you that you must forward it to others and something good will happen to you. But it was not one of those. Rather, it was a list of incidents relating people's humanity, empathy, gratitude and grace, and what made it even nicer for me was its absence of any mention of God; it was simply an account of the amazing creatures we can be if we are open, loving and mindful of others. Thank you, Scott, for knowing that this w ..read more
Visit website
What matters
Calvin's Story
by
7M ago
While grasping Calvin's wrist, we limped along the narrow road toward the water. Every few seconds I wiped drool from his chin with the corner of the bandana tied around his neck. He grimaced as the wind whipped his hair and the sun beat his face. A couple hundred yards further, when we reached the tip of Simpson's Point, I plopped him down at the top of the decrepit cement boat launch. It was a stunning day, and the mild waters of high tide had attracted the usual crowd of sunbathers, swimmers and waders. We sat for a spell and visited with a few friends before a Parks and Recreation employee ..read more
Visit website

Follow Calvin's Story on FeedSpot

Continue with Google
Continue with Apple
OR