What day is it, even?
Pinwheels | Life With Down Syndrome
by jennifergg
3y ago
It’s been nearly a year since my Dad had brain surgery, and yet, it feels like it just happened. It was one of the last things I was able to do, before Covid times. To travel to the hospital and be there when he woke up. And now, time has a strange quality. The hours are moving so slowing, but the months have passed quickly. I can’t believe it’s been so long, since I was able to visit with neighbors, to talk with strangers, to hug a friend. Sending you all virtual hugs, friends. xoxo ..read more
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Just do one thing.
Pinwheels | Life With Down Syndrome
by jennifergg
3y ago
I’ve been in a funk lately, it seems, for so long. Not myself, not able to do the things that make me happy, which makes me more not myself, and downward we go. I was reading an article online (I know, how did I think this would help?) and it was about depression. It said if your living space was messy (yes), if you weren’t doing the things you love (yes), if you’d given up on self care (yes), maybe you are depressed. Too many yeses. The sun came out for a tiny minute today, and by some grace I had the idea and the strength to clean up my closet. And that lead me to clean up my kitchen, and th ..read more
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How many happies do you have?
Pinwheels | Life With Down Syndrome
by jennifergg
3y ago
Each morning when Avery wakes, he tells me how many happies he has in his heart for the day ahead. Things like he’s going to swimming that day, or he’s happy that Carter is coming home, or that he’s ordered something from Amazon that he expects will arrive. His happies make ME happy, for many reasons. It shows me he is getting better at counting, they show me he can keep track of days and what happens on each day (something we’ve been working on for a while now) and he is reminding me every morning to count my happies, too. I have so many of them, including you. Thanks for reading ..read more
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The heart wants what it wants
Pinwheels | Life With Down Syndrome
by jennifergg
3y ago
It’s been 20 days since our divorce was finalized through the courts. I struggle with the language because it’s all so black and white: mine, yours. You did this, I did that. Before, after. Even the terms–ex/wife, husband, daughter in law, son in law. Who are we, now that we are not married? It’s all a lot to navigate, even without Covid. But now, we are a family of ex-es and a household of halves. Half the mom-dad yin-yang the boys were used to, and now it’s mom, and a sad mom. I’m so lucky in so many ways (hello, all the things, read the archives if you don’t know) but I never thought I’d be ..read more
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Hard times and pie
Pinwheels | Life With Down Syndrome
by jennifergg
4y ago
Well, it’s official.  Avery hates wearing a face mask and no amount of trying to make it feel fun (it’s like Halloween!  Or, we can all be banditos!  Or, I will give you a gummy bear if you wear it!) will convince him.  Because, really, when have I ever been able to convince him of anything that is not true?  He’s a truth detector.  And there is nothing fun about any of this. So we will stay home forever, or until there is a vaccine or a cure. And that is not the last of it, we have been talking a lot at my house about race, and inequity, and trying to learn and a ..read more
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Happy Saturday Night
Pinwheels | Life With Down Syndrome
by jennifergg
4y ago
Right now, all three boys are home and I can hear them upstairs, laughing about something that would probably take too long for them to explain to me for it to still be funny.  Something about computers, maybe a game, who really knows?  All that matters to me is the beautiful sound of their laughter, trickling down the stairs.  It’s something I don’t want to forget. Happy Saturday night, to you and yours, wherever you are ..read more
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He’s the man
Pinwheels | Life With Down Syndrome
by jennifergg
4y ago
This is Avery, who loves to zipline.  If you told me this would be part of our life 15 years ago, I never would have believed it ..read more
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Happy Saturday Night
Pinwheels | Life With Down Syndrome
by jennifergg
5y ago
Right now, all three boys are home and I can hear them upstairs, laughing about something that would probably take too long for them to explain to me for it to still be funny.  Something about computers, maybe a game, who really knows?  All that matters to me is the beautiful sound of their laughter, trickling down the stairs.  It’s something I don’t want to forget. Happy Saturday night, to you and yours, wherever you are ..read more
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He’s the man
Pinwheels | Life With Down Syndrome
by jennifergg
5y ago
This is Avery, who loves to zipline.  If you told me this would be part of our life 15 years ago, I never would have believed it ..read more
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October is here!
Pinwheels | Life With Down Syndrome
by jennifergg
5y ago
And if you’ve got a person with Down syndrome in your family, you know that it’s Down Syndrome Awareness Month.  This is a terrific post about what it feels like for us, and there are more links in the comments to other families and their stories.  That’s what I love about this month:  it reminds us we’re not alone. This is from ten years ago, at our first Buddy Walk.  Where did the time go ..read more
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