Pheo vs Fabulous
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This blog is to educate whoever will read it about the disease that the author is fighting, malignant pheochromocytoma. A first-hand look at my fight & impact with metastatic pheochromocytoma cancer... meanwhile staying my fabulous self!
Pheo vs Fabulous
3w ago
There are two new pages on http://www.pheovsfabulous.com under the dropdown menu
One explains the difficulty leading up to a diagnosis of metastatic thyroid cancer (unrelated to pheo)
The other goes into great detail of what it looked like to advocate through surgery
You can start here and then here
I am healing well, that’s where my focus has been since it’s been such a short window of time.
I am targeting inflammation in my body in order to stabilize. I’ve had surgery and now radioactive iodine in just over a month so it’s been a lot.
Continued updates will come
Pheo vs fabulous ..read more
Pheo vs Fabulous
5M ago
I was told I had 1-5 years to live.
I sat in a white office with the same diabetes posters and bland medical facts I had looked at several times, and contemplated how angry I was. Angry because had I not been so ‘rare’, something might be different. Perhaps someone might have listened to me, instead of blaming my symptoms on anxiety. This was the worst day of my life.
I would not be sitting here listening to how I had over 20 tumors that metastasized all over my organs, and were now killing me at an aggressive rate. I’d be planning my next vacation. Discussing a promotion. Contemplating moving ..read more
Pheo vs Fabulous
9M ago
If you’ve ever had your battery run so low that seemingly small things like brushing your teeth is WORK, this article is for you.
Self care is a wonderful replenishment of the mind, body, and spirit. It allows us to realign with our true selves by creating a flow again.
But what if you’re burnt out? What if you’re disabled and can’t leave the bed much? What if you’re feeling really low and just can’t get the motivation? Or maybe you’ve just been through anaphylaxis and every single thing is scaring you in fear it’ll happen again…
Yep, guilty. That’s me currently, and rightfully so. It takes we ..read more
Pheo vs Fabulous
1y ago
Anyone with a chronic illness knows a certain unpredictability. Whether they will have a good day or a bad day is unknown.
But what if you lived in a body where the suddenness of the symptoms ruled your world?
Living in an unpredictable body goes beyond the scope of not being able to plan. It’s more than not knowing if you’ll get a debilitating headache or a pain flare. Those I can plan for, I do plan for.
Living in an unpredictable is not being able to trust your own body.
I love my body, but it’s hard to trust it.
Your body can feel like the enemy.
When I was first diagnosed with pheochro ..read more
Pheo vs Fabulous
1y ago
Last oncology visit of the year
I count appointments, small wins, month to month, day by day, because there’s no line we cross or distinguishing number that says we’re ‘done’.
This was originally our 2nd last appt of the year (5 of 6) but on the long ride there – rheumatology called and booked me in on the 20th
so much for a finish line
But here are some pretty big numbers I was reminded of today…
While crying in disbelief with the nurses that saw me today, hand in hand we reminisced over all those numbers that led me here
Two 10+ hour surgeries
3 minutes flat lined
Over 900 days straight of ..read more
Pheo vs Fabulous
1y ago
HELLO Fab Fam! I’m so happy you’re here. The holidays are fast approaching, the most wonderful time of year has some challenges for the chronic community.
I’ve compiled my ultra fav items to help inspire YOUR shopping list! I’m only sharing products that have impacted me in a significant way. This way you can be sure to know it’s tried and true, fabulous approved
These items have either brought extreme joy to my heart, solved a problem, reduced pain, improved my wellness, encouraged self love and inspired self care, and OF COURSE – helped me stay ‘fabulous’!
The majority of these are from sma ..read more
Pheo vs Fabulous
1y ago
What is global NET CANCER DAY? What does the ‘NET’ stand for?
NET cancer day is recognizing all ‘neuroendocrine’ type tumors and cancers. Meaning the tumors arise from the neuroendocrine cells in the body. NE-T stands for neuroendocrine tumor and NE-c is neuroendocrine cancers.
This day brings us all together to push for change in the diagnostic process. It provides a global effort to inform patients of what symptoms to look out for.
The NET CANCER DAY campaign is to
KNOW THE SYMPTOMS.
PUSH FOR A DIAGNOSIS.
As someone who’s been touched by this disease since my teens, I can say from experien ..read more
Pheo vs Fabulous
1y ago
I feel like I have so much to discuss since yesterday’s appointment, so here we go. NET CANCER DAY has really got me thinking a lot about how much responsibility falls on us as the patient. I’ve always known this, and I often discuss how the information I share relies on us (the patients) to advocate for themselves in an unbelievable way
Somehow yesterday living it in real time while the campaign ‘know the symptoms, push for a diagnosis’ echoed in my mind…. It hit different
I’ll be giving a bit of a health update, while sharing how I prioritize multiple symptoms and conditions
The difficulty ..read more
Pheo vs Fabulous
1y ago
I feel like I have so much to discuss since yesterday’s appointment, so here we go. NET CANCER DAY has really got me thinking a lot about how much responsibility falls on us as the patient. I’ve always known this, and I often discuss how the information I share relies on us (the patients) to advocate for themselves in an unbelievable way
Somehow yesterday living it in real time while the campaign ‘know the symptoms, push for a diagnosis’ echoed in my mind…. It hit different
I’ll be giving a bit of a health update, while sharing how I prioritize multiple symptoms and conditions
The difficulty o ..read more
Pheo vs Fabulous
1y ago
When we are in a chronic state of stress, it causes a physiological and psychological response called survival mode. This means the MIND AND BODY are focused on one thing and one thing only: danger
This mode involves the release of stress hormones and the activation of our stress-response systems.
Here’s the thing: this mode is essential, it’s life or death because our bodies NEED to be able to detect a threat and know the difference of when to fight, or flight
Now, imagine not being able to make your way out.
That is what life with an adrenaline secreting tumor is. Your body is trapped in th ..read more