I went to the Medical College of Virginia yesterday to get my biopsy results. It was my "it's been 4 years since your transplant" appointment. I'm so grateful to report there is still No Evidence of Disease (NED) in my blood or my marrow.  I'm 100 donor cells and my immune system is getting stronger. I even got the final phase of my "baby shots" yesterday. It's finally feeling like I've turned a corner and my bone marrow transplant is getting further away and my life is coming back. It's taking me a long time to get my strength back. I also struggle with ehlers-danlos syndrome (a very pain ..read more

It's a week of doctors and more testing in the land of Bone Marrow Transplants. My latest diagnosis is POTS.  Postural Orthostatic Tachycardia Syndrome (POTS).  What the heck is it? POTS is a form of dysautonomia (explained) that affects the flow of blood through the body, thereby causing dizziness when standing. Technically, someone has POTS if their heart rate increases by 30 beats per minute or their heart rate is greater than 120 beats per minute within 10 minutes of standing up. What is dysautonomia? Dysautonomia is an umbrella term used to describe several different medical conditions ..read more

Romans 8:28 28 And we know that in all things God works for the good of those who love him, who have been called according to his purpose.I got 7 vials of blood drawn yesterday.  They are running some special tests - I've got some odd reactions going on. I’ve got the shakes, actually. My legs and my hands. I don't think it’s related to my bone marrow transplant. But who knows, really? Doctor visits.X-rays.Blood draws.Not feeling well.Being tired all the time.Having to ask friends for rides to appointments. I’m sick of it. All of it. I want to go back to 2013. Before I had cancer. Before I even ..read more