Roughly a week ago we noticed an odd reflection in my nine month old baby’s left eye. Fast forward 4x visits, an EUA and an MRI.. my baby was diagnosed with eye cancer, know as retinoblastoma. It has unfortunately advanced to stage E and he has lost vision in his eye. Fortunately, the MRI showed that the cancer didn’t spread to the optic nerve so we may be able to hold off on chemo if we are in the clear. The devistating news, aside from the cancer itself, is that my baby’s beautiful left eye will need to be removed. ? I am equally optimistic, shocked, mad, upset.. anyone here experience this ..read more

Hi everyone, I am a PhD student at Concordia University and I am currently recruiting parents of Canadian children that currently have or previously had cancer to participate in our Beyond Study. The Beyond Study aims to better understand the mental and physical well-being of Canadian youth with cancer, survivors of childhood cancer, and their parents, as well as the impact of the COVID-19 pandemic on their well-being. Participating in the Beyond Study involves an online survey which takes about 20 minutes to complete. Once complete, you will then have the chance to win a $100 Amazon gift car ..read more

Just looking for information/experiences with the diagnosis and ways I can support my friend. Her son was diagnosed this week and he just barely turned 2. He is starting chemo today with planned surgery and bone marrow harvests in the future. He is their only child and they are staying at the hospital with him. My son has a congenital heart defect and despite going through a traumatic hospital stay a year ago, I’m finding it hard to know what to do or say. We’re planning on dropping off meals. Is there anything else that was particularly helpful while you were in the hospital? submitted by ..read more

Hello, my name is Komal. I am a graduate student in the Kinesiology department at SFSU. I am researching the role of parents in the motivation to perform physical activity in pediatric cancer patients. I am looking for parents/guardians of children aged 6-12 years old who have been diagnosed with or have had pediatric cancer and are actively involved in their child's care. The study involves doing a survey and an interview over zoom. Please dm me if you are interested! submitted by /u/koyashope [visit reddit] [comments ..read more

The My Health Journey App is designed to help children between the ages of 5-15 navigate their health journey. Hoffy, the Sloth serves as a companion from diagnosis to post-treatment care. The app features interactive scenes and mini-games, helping families explore challenges such as the first doctor’s visit, taking a blood sample and managing hair loss during chemotherapy. If you're interested in delving deeper into the BTF app and understanding how its tailored to support children throughout their treatment journey, feel free to click on the following link to explore our website: BTF App De ..read more

I have our pediatrician appointment set in 2 days but I can’t focus at all until then. Last week, my son had Petechiae on his front and back neck, about 1 day apart, one after the other. This preceded a 3 day fever during which he was extremely lethargic and lacked any other symptoms (no congestion). I’m on my way to my daughter’s soccer practice and I’m just in an all messed up state. What have been your experiences, and has anyone had petechiae coupled with fever (and no other conditions) end up being another condition like CMV? submitted by /u/aria4088 [visit reddit] [comments ..read more

A ..read more

A ..read more

A ..read more

A ..read more