Smashing Walnuts Applauds The Kids First Research Act 2.0
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
Smashing Walnuts Foundation Applauds Introduction of The Kids First Research Act 2.0 “It’s a Good Day in the Fight against Childhood Cancer” LEESBURG, VA— Smashing Walnuts Foundation is a non-profit organization dedicated to raising awareness of, and funds for, finding a cure for childhood brain cancer. Today, Smashing Walnuts Foundation commends Congresswoman Barbara Comstock of Virginia for introducing The Kids First Research Act 2.0; H.R. (House Resolution) 2008. “The Kids First Research Act 2.0 will transfer approximately $320 million in idle federal funds to the NIH to be used for childho ..read more
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Ideas On What To Say To A Bereaved Parent
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
Today I took Jake to a party at the temple that we used to belong to. As soon as I parked the car Jake took off to play and hang out with his friends. It was a very spontaneous decision to attend. I generally need to psychologically prepare myself to go to places that had been a big part of Gabriella’s life. Jake was happy and I ran into so many people that I miss. It was really good to see them and have the opportunity to catch up. But, I wasn’t prepared for the avalanche of emotions. I was talking to a friend of mine when I saw two of Gabriella’s girlfriends; one of whom was her best friend ..read more
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Today I went to a funeral…
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
I went to a funeral today. It was for a little boy that was only seven years old. I’ve been to more funerals for children over the past four years since we entered this world of childhood cancer than I can count. Viewing the grief of these newly bereaved parents is like ripping a bandaid off of a raw and gaping wound. It brings all of the memories, that we try to push below the surface so that we can function on a daily basis, front and center. Today’s funeral was especially sad for me. We met this family four years ago at Children’s hospital when we were going in for weekly treatments. I rem ..read more
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Valentine’s Day Hearts from Gabriella
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
Happy Valentine’s Day! What holiday could be more perfect than one filled with love and hearts! Valentine’s Day was one of Gabriella’s favorite holidays. Even as a little girl Gabriella would want us to get her flowers and chocolates and things that had hearts on/in them. It was almost as if this holiday was created with Gabriella in mind. This year I am filled with nostalgia as I think about the innocence of childhood prior to cancer coming into our lives. I really don’t remember specifics of Gabriella’s last Valentine’s Day. I know that her school always had a party and my mom and her gentle ..read more
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Our Love Never Dies
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
I spent time with one of my dearest friends today. She didn’t have an easy childhood. As a matter of fact, it was quite horrible. She is bright and bubbly. She is a friend that you know has your back. You know that you can count on her. We can talk about anything. No subject is taboo; no matter how bizarre or off-the-wall or awful. During our conversation today we started talking about PTSD – post traumatic stress disorder. That phrase is bandied about on occasion but it never seems to be addressed with depth and seriousness. At one point during our conversation my friend said that she was “br ..read more
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Smashing Walnuts Commends Congressional Approval of CURES
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
A bill that will accelerate the delivery of breakthrough treatments and cures to those in desperate need is headed to President Obama’s desk for a final signature. The United States Senate and U.S. House of Representatives passed the 21st Century Cures Act in early December. Click here to Read the full CURES news release ..read more
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Between Now and Thanksgiving
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
Between now and Thanksgiving… 3,000 children worldwide will be diagnosed with cancer. One third (1/3) of them will have brain cancer. Our family was one of those families. Our perfectly healthy nine-year old daughter was diagnosed with an inoperable brain tumor in the days before Thanksgiving. We were told that the cancer that Gabriella had was “terminal on diagnosis”. We were told to build as many memories as we could because we would only have our Sweet GG for another 9-12months. We started Gabriella on a palliative treatment – radiation to the brain – immediately. I remember that she had su ..read more
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Getting Ready for the Shamrock Smash
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
Gabriella asked us to continue the fight to find less damaging treatments for kids with brain cancer and we are doing as she has asked. Our 3rd Annual “Crack the Cure” Gala is quickly approaching it will directly fund scientific research and help us fulfill the promise we made to her. On March 19th we will gather at the Ritz Carlton – Tysons Corner and, along with more than 350 others, welcome Larry Michael, the “Voice of the Washington Redskins”, as our event Emcee. Last year, he did a wonderful job engaging our sold out crowd and we look forward to having him join us again. We will also be w ..read more
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Director of NIH to Speak at Smashing Walnuts Gala
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
Smashing Walnuts is honored to announce today that Francis S. Collins, M.D., Ph.D., Director of the National Institutes of Health (NIH), will be a featured speaker at the 3rd Annual Cracking the Cure Gala on Saturday, March 19, 2016. Dr. Collins leads the NIH, the largest supporter of biomedical research in the world, spanning the spectrum from basic to clinical research. Dr. Collins is a physician-geneticist noted for his landmark discoveries of disease genes and his leadership of the international Human Genome Project. He is an elected member of the Institute of Medicine and the National Aca ..read more
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Smashing Walnuts Foundation Applauds Congressional Support for Pediatric Cancer Research
Smashing Walnuts – Cracking the Cure for Childhood Brain Cancer
by Ellyn Miller
3y ago
$12.6 million in additional NIH funding will help advance research into pediatric diseases Leesburg, Va.–The Smashing Walnuts Foundation, a nonprofit organization dedicated to raising awareness and funding to find a cure for childhood brain cancer, commends Congress for coming together to pass, and the President for signing, a comprehensive appropriation bill that includes critical research dollars to fight pediatric cancer and other devastating childhood diseases. In addition to a $2 billion increase to the overall budget for the National Institutes of Health (NIH), the bill dedicates $12.6 m ..read more
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