I’m Still Standing
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
9M ago
While the memories are distinct and clear, it was all such a blur and in an instant, my life had changed… The phone rang and someone in the house had answered, it was the neuro-ophthalmologist and he asked us to come in immediately. When we arrived, he wasted no time and pulled no punches. “Chris, your MRI showed a very large mass in the center of your brain. I’ve already contacted the chief of neurosurgery at Yale NH and he and his team are waiting for you.” Today marks fifteen years since that fateful day and I have learned so much – about myself, but also about perseverance and realizing th ..read more
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Come Sail Away
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
1y ago
My apologies. It’s been a while since I’ve posted, and this has been intentional. I realized that I’ve just needed some time to unplug from this part of my life, but apparently, life is not as ready for me to be done with this journey just yet. About a month ago, Ashley and I were sitting on the deck, drinking our coffee and watching the birds fly around the yard, in and out of their bird houses. However, something just didn’t look quite right – did she buy more bird houses?! My worst nightmare had manifested itself again, but I wanted to give it a couple of days to see if was allergies or jus ..read more
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Better Days
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
2y ago
Well, here we are – the end of 2021 is mere hours away and if you’re anything like me, you cannot wait for 2022 and better days. At least, I think so? I am hopeful that the new year will bring the “return to normalcy”, in whatever form that may look like and much better days for all of us. I don’t know about you, but I am sick of Zoom meetings, virtual events and the terms “social distancing” and “masking.” This past year has presented all of us with unique challenges, requiring that we be able to adapt on the fly, and my job and passion for this cause has intensified. All cancer patients, but ..read more
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Someone Saved My Life Tonight
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
3y ago
Since the day of my diagnosis, I have faced my share of adversity and many ups and downs.  Along with my family and friends, one of the few constants however, has been my neurosurgeon and good friend, Dr. P.   From the fateful day I met him in 2008, he always provided a sense of assurance and confidence that I desperately needed.  Earlier this week, when the news became public that he will be retiring after a remarkable 44-year career, I was filled with sadness and joy. Over the past twelve years, he has evolved as “my doctor” to someone I am proud to call a friend.  I ..read more
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Thank You For Being a Friend
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
3y ago
#2020.  Aside from 2008, this year has been the pits.  The struggles and difficulties all of us have faced continue to be a burden and we’re all hurting, so let’s hope these next three months go quickly and easily. Nobody could have predicted the ever-changing landscape of the world we live in, but planning events and fundraising has been especially difficult.  Despite all of this adversity though, we reached our goal at Brainstormin’ thanks to the support of friends, family and the community!  Now on to the Path of Hope, albeit virtual this year, and we hope it will p ..read more
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The Show Must Go On
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
4y ago
Dear Family and Friends, I hope that you and your family members are safe and well during this difficult time in our lives.  Navigating the year so far has been difficult, but the uncertainties and day to day changes feel oddly familiar… It was twelve years ago today that I underwent my first brain surgery for the removal of my tumor, but yet, it still feels like yesterday.  I remember the ride from my eye doctor to the hospital.  I remember the feeling of surprise upon hearing how large the mass was and the shock and awe of the doctors and nurses examining me.  I can ..read more
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I’ll Be There For You
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
4y ago
The minutes have blended into hours, the hours into days, and the days into months.  The end of 2019 was a blur and so far, the start of 2020 has been difficult. During these unprecedented and unsettling times, my heart goes out to everyone, from those inflicted with the virus, to brain tumor and cancer patients alike.  And while my priority remains with the care and assistance of brain tumor patients, my deepest gratitude is with the front line workers in the hospitals around the world.  Thank you for your commitment and efforts.  Because of you, we will get through this and as a community, w ..read more
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Blessing in Disguise
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
4y ago
“It’s the scars that make you stronger, It’s the hard times that make you wise, It’s the sweet things only time brings, That arrive like a blessing in disguise.” You know the story, but eleven years ago, I was fearful and afraid, unsure if I would wake up from surgery, or what my life would be like afterwards.  Yet, things have worked out very well and after another amazing night at our sixth annual Playing for the Cure: Brainstormin’ event on Friday night, I can one-hundred percent say my diagnosis was a blessing in disguise. As I stood at the podium and looked out to the crowd, all 300+ of y ..read more
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Hallelujah, Hallelujah
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
4y ago
Playing for the Cure: Brainstormin’ is 30 days away!  Along with my family and the Connecticut Brain Tumor Alliance, I am really looking forward to another great year and building on the success we’ve had since 2014. We’ll be back at Stony Creek Brewery in Branford for this annual event that celebrates brain tumor warriors, caregivers, doctors, nurses, family and friends as we gather together in our quest to find the cure and improve treatment methods.  I cannot say enough about the staff at the brewery, including Ed Crowley, Ali and Norm – you three make this a great event, and I am humbled b ..read more
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The Man
Grey Matters | Brain tumor education, support, and inspiration
by chrisgreymatters
5y ago
I took last night to let the news sink in, or at least I tried to, but yesterday’s news brought too much excitement.  I knew the day would come and I was optimistic, but I have still yet to process it.  Yes, yesterday I received the best news ever from my medical team at Yale .  After 11 long years of battling this beast, starting at age 24 which required 5 surgeries, radiation, an onset of seizures and pretty much uprooting my life and changing the course of my career, albeit I am grateful – I am officially “tumor free!” Upon seeing my doctor walk into the room, my heart sank and I got a pit ..read more
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