I don't know how time has been flying so fast. I want it to slow down, especially since I am now on limited time. I have tried to keep busy but have gotten to a point that things are just too exhausting and so I am staying home more, which I am ok with if it wasn't so dang hot. My swamp cooler just can't keep up with the heat and I end up just sweating like crazy. No fun. Medically there are a few new things. I am not on oxygen 24/7 and I can tell a big difference in how I feel. I have portable tanks but they have proved to be hard to lug around so I don't venture out too much with them. I al ..read more

Here is the link to when I was interviewed by Abby and Jon Huntsman for Fox and Friends A Look Inside the Huntsman Cancer Institute ..read more

When you are told that you have limited time, and know that as a truth, you want to do as much as you can and see as many people as you can as possible. I have been trying to do that ever since I was given my timeline. Well now things are getting a little more real, my body is slowly slowing down and so with that means I have to slow down. I am close to needing oxygen daily and I have a fear that I am retaining fluid in my lungs and/or my abdomen. I will most likely be going up to Huntsman tomorrow to have both of those issues addressed and we will see what happens. I am scared to go to the ho ..read more

It's been two weeks since I started sharing the news of my timeline. Every conversation was so hard, but also so good at the same time. Conversations have become more meaningful and deep. Saying things that you wouldn't have said if it wasn't for the harsh reality that is coming. With the conversations have come many social gatherings and meet ups so that has been fun. And exhausting. I have been tapering off of prednisone so the energy level is dropping. I still feel well though so that is good. I can feel that the tumors are growing, just slowly thankfully. I decided to take the remaining BR ..read more

Yes, we have reached this point. Ever since I returned from my trip to Portland I haven't felt very well. I have had extreme fatigue and weakness. I have been a bit short of breath, and the best way to describe it is that I can feel my lungs. They don't hurt, I am just aware of them. There is a slight wheeze in my deep breaths. I kept telling myself that it is just the Keytruda starting to work and maybe getting a little pneumonitis from the treatment (that's one of the side effects). I started to realize that something had to be off with my oxygen but when I went in for my second infusi ..read more

Huntsman Cancer Hospital and Institute is basically like a second home to me; whether I like it or not. For the last 8 1/2 years I have gone up there for all of my cancer care. Numerous scans, tests, appointments, laughs, tears, hugs, food, overnight stays, losing friends and loved ones, infusions, fluids, treatments. All of the things.  When I started going there they had just opened phase 3 of their plan of the institute. This past week they finished and dedicated phase 4; Primary Children's and Families Cancer Research Center. It is an entire wing fully dedicated to research of ch ..read more

Oregon is amazing. Period.  My friends and I love to travel together and when it started lining up that we could all make Portland work, we did just that and made a unforgettable vacation happen.  Four of us flew in on Saturday and got our rental car and drove up to Cannon Beach on the Pacific. It was stunning. The ocean there is different than in California and has a sense of calm and peace. It's misty and intriguing and just beautiful. The towns up there are quaint and homey. Welcoming. We stayed the night in Seaside at a cute riverside condo, got some amazing strawberries on the ..read more

Man I am a slacker in updating lately, guess that just means I'be been busy doing other things, good and bad. Here's what's been going on... Scan results and such... I had my appointment with my general oncologist to go over the scans and decide what we are doing next. As far as scan results go - relatively stable. There are some lung mets/lesions that are larger but most are the same or smaller. Liver, spleen and bones are all stable, if not improving. Front of my neck is obviously larger. My brain tumors are both smaller and there aren't any new tumors which is great. Now treatment options ..read more

I had an incredible time on my vacation to San Diego. We packed the days with the Safari Park, Sea World and lots of good food. The most fun of it all was all the good times talked about and made. Knowing someone for 30 years means you've had a lot of fun times and have known a lot of people down the road. It was fun to reminisce for sure! The first full day we went to lunch by the sea in La Jolla, it was gorgeous and tasty. We then headed to the Safari Park. Between the beach and the inland we gained 20 degrees in heat - landing at 94degrees. No fun on that front. Besides the heat - the park ..read more

Right now I am on a flight to California to spend the weekend with some long time friends. I have known one since I was 4 or 5. So let's just say it's our 30th anniversary of friendship trip! Pretty incredible when you think about it. Him and his wife saw that I wanted to go to Sea World/San Diego before my 35th birthday so they were kind enough to use their flight points to get me there and do hotel and car. Seriously so generous. We were supposed to go in October of last year, but surgery and treatment got in the way of that. This time we were able to plan a time quickly and I'm so thankful ..read more