In This Episode   We’re picking up where we left off in episode 148: “I felt I had been harmed” with guest Jamie Tyrone.  Jamie is the author of Fighting for My Life: How to thrive in the shadow of Alzheimer’s. She first appeared on the pod in June 2019 in episode 100: “Enjoy us in the moment.” The second part of that conversation is featured in episode 104: “I call it a gift.”  In those episodes, Jamie talks about care partnering experiences and how she came to write her book Fighting for My Life: How to thrive in the shadow of Alzheimer’s, plus reveals how she unexpectedly f ..read more

In This Episode   We originally introduced you to our guest today, Jamie Tyrone, in episode 100: Enjoy Us in the Moment. In that episode, Jamie starts walking us through her experience of finding out (by accident!) she has two copies of the ApoE-4 gene, which puts her at a 91% lifetime risk of getting Alzheimer’s disease. In addition to having a great-grandmother, grandmother, and two great-uncles who died of Alzheimer’s disease, at the time Jamie found out her own genetic information, her dad was living with Alzheimer’s disease. Jamie didn’t let any of that slow her down. A traine ..read more

Show Notes This episode is part two of our conversation with Dr. Jason Karlawish, author of the new book The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. The book is out today (February 23, 2021) and is available as both an audio book on audiobooks.com, as well as hardback at your favorite bookseller. And of course we’ve included links in the section below the audio player. If you haven’t yet listened to the first part of our conversation with Dr Karlawish in episode 146: It’s a Disease of Autonomy, you’ll want to h ..read more

Show Notes Phil Gutis, former New York Times reporter and our Assistant Sherpa, interviews Dr. Jason Karlawish, author of the new book The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. Dr. Karlawish was very generous with his time, so this episode is part one of two.  In part one, the wide-ranging conversation touches on: Aducanumab How we got to a place that — 100+ years later — still doesn’t include a cure The concept of “pre-clinical Alzheimer’s disease” Public stigma and self-stigma Why Dr. Karlawish believ ..read more

Affiliate disclosure: As an Amazon Associate I earn a small commission from qualifying purchases, at no/zero/none/nada additional cost to you. If you’ve heard/read/seen something helpful on The Alzheimer’s Podcast or the Dementia Sherpa blog or YouTube channel, purchasing through the links in this post is a way to show support (thank you!). It’ll Be Different This Time   For many people, it doesn’t officially feel like the new year until the first Monday in January, when it’s time to go back to work and hop on board the diet that’s really, truly going t ..read more

In This Episode Mikaela Wilson and Spencer Coombe both started out working as direct care staff in long-term care as teenagers. Now, they’re the co-founders of Senior Support Services of Southern Ontario in Hamilton, Ontario. Because of their background and the fact many of their clients live in long-term care, Spencer and Mikaela were the perfect people to talk to about the Canadian military report on conditions found in five nursing homes in Ontario as COVID-19 tore through the province. Mikaela and Spencer first appeared on #140: “We weren’t shocked” discussing the absymal situation ..read more

Show Notes After reporting on the FDA Advisory Committee meeting for Biogen’s phase 3 trial drug aducanumab, Phil started wrestling with two parts of himself: should the guy who believes in science prevail, or the guy living with the diagnosis? This week, picking up where we left off in Episode 143: “We have a friend,” Christy throws in her emotional thinking on the topic. Toward the end, Christy urges voters to think about how elected officials vote on funding research at NIH and what that means: On December 17, 2019, the House passed H.R. 1865, the Further Consolidated Appropriations Act ..read more

In This Episode This episode was recorded November 9, 2020. Phil and Christy discuss President-Elect Biden and Vice President-Elect Harris’s victory and the ongoing impact of COVID-19 within our community. But mostly, Phil wrestles with two parts of himself about what happened last week at the FDA Advisory Committee: should the guy who believes in science prevail, or the guy living with the diagnosis?    (39 minutes) Show Notes COVID-19 Nursing Home Cases Up 400% in Surge States Aducanumab Setback? FDA Advisory Committee Meeting Presents Unexpected Snag Phil’s Journal: Re ..read more

In This Episode We’ve got two top-notch guests on the show today, Alexandra Jamieson and Bob Gower.  They’re co-authors of the new book, Radical Alignment: How to Have Game-Changing Conversations That Will Transform Your Business and Your Life. You won’t be surprised to hear we’re going to focus on the “your life” aspect today. Be sure to listen all the way to the end of the episode for details on a generous special offer if you order the book before August 10, 2020–that’s tomorrow!–or head straight over to RadicalAlignmentBook.com right now if you can’t stand the suspense.  Alexan ..read more

In This Episode This episode is part two of my conversation with Mikaela Wilson and Spencer Coombe, co-founders of Senior Support Services of Southern Ontario and co-authors of Any Game for Any Brain. Last episode, we talked about the Canadian military’s report on five nursing homes in Ontario and the awful conditions they found there. As Spencer said, it was shocking, but “we weren’t shocked.” John Lewis had it exactly right when he said, “When you see something that is not right, not just, not fair, you have a moral obligation to say something, to do something.  Our children and their ..read more