My GF asked me to leave because she has Crohns She told me that we can't make a normal family as this disease making her life abnormal She said something about our childrens will have this disease but I believe the probability of getting a child with this disease is low I am supporting her and want to know if here doubts and thoughts are right? Should I leave as she asked me ? I am not a pragmatic person, I am thinking about here too and want the best for us submitted by /u/Accomplished_Pin_626 [visit reddit] [comments ..read more

Hi everyone! I got permission from a group admin to post this, thanks for letting me be here! My name is Indi Khera and I'm a health and science journalist based in Chicago. I am currently working on a story about the factors and solutions behind nationwide drug shortages for Science Friday. The episode is part of a series dedicated to the intersection between science and policy. My colleague Eli Cahan and I are focusing on three drugs - penicillin, methotrexate and vinblastine - as case studies for the causes behind shortages. Highlighting a patient perspective from someone impacted by short ..read more

A month ago I got blood work done and my Coccidioides Ab, IgM01 was at 1.2, took it again last week and it came back as 1.3. It says levels 1.0 - 1.4 are: Equivocal - Questionable presence of Coccidioides IgM antibody detected. Repeat testing in 10-14 days may be helpful. But my gastro said if I take it again (today) and they're still high I'll have to stop taking my stelera which is a bummer because it's working. Has anyone had to do this before? Thanks submitted by /u/bluemust [visit reddit] [comments ..read more

Folks Anyone can make an informed guess, what is the future of this disease in say 5 years? What new medication might come up? The next big thing could be pills instead of IVs for all the medications. Are any medication possible without major side effects and its efficacy last? We need hope, hope that we can live a normal life. Currently I am just anxious about my future. submitted by /u/Critical_Repair8511 [visit reddit] [comments ..read more

I’ve been on Remicade for 6 years and it’s worked wonders for me. The only symptom I’ve really dealt with is constipation which I manage with stool softeners. I have infusions every 6 weeks, and had my last one 3 weeks ago. This morning I didn’t need to strain but there was fresh blood on the TP after I wiped. Maybe a tinge in the actual bowl. Does this mean the start of a flare, or could it just be a one time thing? I have felt very fatigued the past few days but I have been going to sleep late so figured it was just because of that. Not sure how worried I should be, or if these things just ..read more

hey guys, i’m considering applying for disability because my manager reprimanded me for using the bathroom so much and i had to disclose that i do have crohn’s disease. i’m tired of having to explain it to my managers and be constantly terrified that they’ll find an excuse to fire me even if they say it isn’t related to the crohn’s. how likely is it that i’ll get approved? my disease isn’t the most serious in the world, i haven’t been hospitalized yet (knock on wood) but i do use the bathroom a lot and i am currently in a bit of a flare. have any of you struggled to get disability or is it fa ..read more

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I can't believe I'm tired enough to do this but here we go. I'm 20M, I've been having GI check-ups since I was 14 years old due to symptoms that aligned with an IBS diagnosis, no probiotic or treatments worked and my calprotectin, frequency and quantity of symptoms were a little extreme. I never trusted this diagnosis but they only found some unspecific ulcers in a colonoscopy they did back in 2019 and they never minded it much. They discharged me last year, and exactly 2 weeks later I had the biggest and most different flare-up ever: shitting mucus for days, straight up driven to dehydration ..read more

If there is one thing I hate about getting a scope is that the doctor always goes over the results while you're coming out of being drugged. Its always a blur. So I have been in remission since 2011 when I had resection where my small meets my large. Honestly no medicine at all since then either. I had a CT scan about 6 months ago for something completely unrelated and they mentioned possible early diverticulitis. I shared the imaging with my GI who said, I doubt that, but we will check in April during your scope. I also started having some on and off lower abdomen pain, which we did not have ..read more

The topic of all topics with Crohn's .... bowel movements. I am grateful the diarrhea that stopped my life in its tracks has ceased after beginning biologics however the volume of formed stool I pass is surreal. Does anyone else experience this???? I have said to my doctor repeatedly "the input does not equal the output". I have 3-4 bowel movements every morning and leaving my home prior to 10:00 am is nearly impossible. I know malabsorption is a huge issue and I have experienced significant weight loss. I eat a very healthy low fiber diet with zero caffeine or alcohol. Will our bowel just ne ..read more