BLOODY PARKINSON’S: HELPFUL DIY SUGGESTIONS
Bloody Parkinsons
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3y ago
The other day my wife sent me to buy a pot of paint from a little local DIY shop for a flat she is refurbishing. The two assistants are leaders in customer service, particularly in the area of unfriendly service. There’s no segment of the population they can’t be rude to. So I was surprised to be addressed by the smaller of the two. “Is it Parkinson’s?” he asked me, presumably after seeing my shake. “Yes”, I answered. “My dad died of it a few years ago” he said helpfully. Following with the equally useful statement: “he was the youngest person in Britain to catch it”. “How old was he whe ..read more
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BLOODY PARKINSON’S: HOPE SPRINGS ETERNAL
Bloody Parkinsons
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3y ago
The first thing the specialist says when we see him for the 6 months catch up tends to be along the lines of ‘how are you?’. Which requires the answer ‘rubbish’. But for some reason I reply that ‘things are fine'.  In some ways they are. Because 3 years since diagnosis I’m the same man, only in a worse place. I’m suffering from arm aching, illegible scripting, eyes dimming, muscles shrinking, smile vanishing, balance failing, shakers shaking, pills swallowing, fingers stiffening, self belief drooping, gait robotic, voice dulling, tiredness debilitating, pints spilling, bladder all over ..read more
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BLOODYPARKINSONS: NEW SPORTS FOR PARKINSON’S PATIENTS
Bloody Parkinsons
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3y ago
Alejandro Finisterre Publisher and inventor of table football, he was exiled by Franco Michael Eaude Saturday 24 February 2007  Exile from Franco's Spain made the life of Alejandro Finisterre, who has died at the age of 87 (died in 2007), one of constant movement and creativity. Though Alejandro most valued his fight to conserve the legacy of the poet León Felipe (1884-1968), whose literary executor he was, he was famous for inventing table football. Which also means I’ve finally found a sport that is ideally suited to Parkinson’s disease sufferers: table football or foosboll. The ta ..read more
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BLOODY PARKINSONS: THE BIN MAN COMETH
Bloody Parkinsons
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3y ago
PD makes your face freeze so you don’t smile quite so easily, even when people say absurd things to you. Like ‘look at ole misery face’. (Dundee pub 2015). And last week I got a new spin on this form of encouragement to smile. I was walking the dog through the woods on the common, when a small terrier bit me on the ankle. Its owner, an older woman, said ‘it’s all right, he won’t bite. In any case, he thinks you are the bin man’. Knock me down with a feather! So it was my fault for looking like her bin man. The dog ran off, yapping; the woman walked on, muttering; my dog would have said she ..read more
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BLOODY PARKINSONS: A LATE QUARTET
Bloody Parkinsons
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3y ago
The Guardian’s pick of the week’s films on TV was ‘A Late Quartet’, made by American documentary film maker Yaron Zilberman based around a famed classical music quartet and led by a recently widowed cellist Peter (Christopher Walken) with the late Philip Seymour Hoffman, Mark Avenir and Catherine Keener. Peter is diagnosed with Parkinson’s and the film follows the turmoil that ensues. Can he keep on playing? Can the group stay together? It is a remarkable film on two levels: first for the chemistry from four such great performances and second for the portrayal of a Parkinson’s diagnosis. Ch ..read more
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BLOODY PARKINSON’S: SOME OF MY BEST FRIENDS ARE BELGIAN
Bloody Parkinsons
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3y ago
In summer there is an unfeasible number of beer festivals and since my Bloody Parkinson’s seems to be calmed by a drop of beer, I attend a fair number of these cheerfully amateur and semi-pro events, sated by a long list of classics and something new. Most of the audience are in a good mood and keen to talk beer and pubs till the cows come home. But there are exceptions.... A small but fiery man came up to me at the Great British Beer Festival at Olympia and yelled at me above the noise to ‘stop shaking!’. I looked at him, slightly concerned, and asked him what he had just said. ‘STOP SHA ..read more
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THE WHY FACTOR AND PARKINSON’S
Bloody Parkinsons
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3y ago
I have to thank Margaret from my French class for the central construct of this week’s blog. Margaret had heard ‘The Why Factor’, a smashing series of 10 minute programmes on Radio 4 which simply ask ‘why?’ and in this particular episode they asked ‘why cycling?’. The programme was, like one of my blogs I like to think, pretty discursive, moving from the history of the bike, to bike commuting and bike messengers in India, and so on to a trans-Iowa bike ride by a woman suffering PD: not a capable cyclist, couldn’t hold a pen, a tremor in her right arm. She was aiming to cycle across Iowa with ..read more
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BLOODY PARKINSONS: BRAIN BURGERS
Bloody Parkinsons
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3y ago
MEATliquor and Fergus Henderson collaborate on a brain burger.  We bite into brains for a very good cause. Burger chain MEATliquor  has teamed up with  St John  owner Fergus Henderson to create a brain burger, which it is selling in order to raise money for research into Parkinson’s Disease.  Fergus Henderson — who suffers from Parkinson's himself — is famed for his nose-to-tail cooking and dishes such as bone marrow on toast. It’s rather appropriate then, that he’s partnered with MEATliquor founders Scott Collins and Yianni Papoutsis to create an offal burger. The burge ..read more
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BLOODYPARKINSONS: FLYING THE FLAG
Bloody Parkinsons
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3y ago
This blog is less about Parkinson’s and more about the issue of flying a flag in our front garden. We, that is the whole Jackson household, are all in favour of remain, so we have a blue with yellow stars EU flag. £3.28 from Amazon – a bargain. So we look like a sophisticated Euro family and, after all, some of our best friends are Belgian! Meanwhile we are obviously England supporters at the Euros and so fly a cross of St George which comes out regularly for the short period when hopes are high. The two flags are essentially unconnected and fly together in close harmony, except.... If yo ..read more
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BLOODY PARKINSONS: TRYING RESTORATIVE YOGA
Bloody Parkinsons
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3y ago
Some parts of this blog are true. Other parts less so. One thing that is true is that I’m desperate to defeat PD. And always willing to try something new....even something called restorative yoga. My wife is a yoga junky: no yoga is too extreme for her, whether late, early, hot, tepid, cold, strenuous or easy. So it came as no surprise that a free trial offer for both of us to give a go to Restorative Yoga hooked her. I was immediately booked in as a slightly resistant triallist. Objections from me included: · What’s it all about? · What is it restoring ‘cos nothing’s broken (not that I ..read more
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