Time for second opinion? Looking for advice/feedback
Reddit - Parkinson's Disease
by /u/spuddywebbs
3d ago
My father (70) was diagnosed in November. Soon after diagnosis he began Levadopa and joined a boxing gym. He was feeling better and medication helped w his rigidity. Over the last two months he has declined rapidly. He has fallen down 3 times the last week. He has neuropathy in a foot that throws off his balance. Rigidity is very strong to where it makes it difficult to exercise and he has gone into a deep depression. It’s very difficult to see this happen so fast. He has been checked twice for UTI, both came back negative. I was under the impression even a fast progression wasn’t this fast ..read more
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Twitch vs. tremor?
Reddit - Parkinson's Disease
by /u/Serious-Ad-8362
3d ago
Lately, my arm has been twitching. Tricep. For normal people, an occasional twitch is normal, but this twitch seems to last. Twitch every few seconds for a sustained duration. Is this precursor to tremor? submitted by /u/Serious-Ad-8362 [visit reddit] [comments ..read more
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Rapid weight loss
Reddit - Parkinson's Disease
by /u/Affectionate-Fail318
3d ago
Hello everyone. My dad has Parkinson’s for the last 10 years. He is 75 years old. In 2022 he suffered his first fall and broke 3 teeth. No fractures. He then had an angioplasty in September 2022. Since then he has lost a lot of weight. He has literally become a skeleton. He has not complained of any swallowing problems. He eats breakfast lunch and dinner: combination of protein, carbs, healthy fats. His cognition and mental faculties are good. I am extremely worried. His weight loss has plateaued to 55 kgs and he is 5 feet 8 inches. However he continues losing muscle. He keeps seeing his neur ..read more
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What exactly are the exercises from Beat PD / Yale Study ?
Reddit - Parkinson's Disease
by /u/Serious-Ad-8362
3d ago
https://medicine.yale.edu/news-article/high-intensity-exercise-can-reverse-neurodegeneration-in-parkinsons-disease/ https://www.youtube.com/@beatparkinsonstoday/videos How can you do high intensity for 40 minutes? Elite athletes can't even do that. ​ Reached 80% vs. sustained 80%? Our cohort included high-functioning patients with mild PD who were motivated to exercise and to comply with the program. Subjects reached HRs of 70% of their maximum and higher in more than 85% of classes, which is consistent with their rating 90% of their classes as very intense. This suggests that subjects exerc ..read more
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Arm Swing
Reddit - Parkinson's Disease
by /u/petunia65
3d ago
I have a question about arm swing: I wasn’t diagnosed until a few years after my right arm stopped swinging. Once diagnosed, the meds helped my stiffness and slight tremor very well (knock wood) but my arm doesn’t swing and it really tires me to force it. Do I force it? Or does it not really matter? Maybe I lost the window to get it back? Maybe I need to push through the exhausting exercises to get it back? I love to walk and do - so it’s not a dire need, but I’m curious. Thank you for all the support and help on this site. Truly grateful. submitted by /u/petunia65 [visit reddit] [comments ..read more
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Anti-dopamine receptor2
Reddit - Parkinson's Disease
by /u/CoconutIcy1731
3d ago
I just completed the Neural Zoomer Plus test and resulted in a “moderate“ score on anti-dopamine receptor 2 marker. Not positive. Not negative. Does anyone understand what that actually implies? And is there a way to reverse it/balance it without medication? I’m meeting with my Functional Medicine practitioner this week and would like to have some background info. Thank you in advance for your response. submitted by /u/CoconutIcy1731 [visit reddit] [comments ..read more
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When PD folks mention doing "boring everyday" things, I feel comforted
Reddit - Parkinson's Disease
by /u/Serious-Ad-8362
3d ago
I was listening to a PD podcast,host had PD for 10+ years, and noticed that even the most casual, passing statement can give insight & subtle clues to what the future holds, which is a source of anxiety for new parkies. "I went to new bakery". This tells me you're well enough to actually go to a bakery. And even seeking out a new one. You can pay for things. You can order at a store. You can wait in line. etc etc. This seemingly trivial statement reflects a lot about your current condition. "I am at Dave's" This tells me you're able to leave the house. You are not home-bound. You are moti ..read more
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Study testing anti-inflammation drug to prevent/stop PD
Reddit - Parkinson's Disease
by /u/Serious-Ad-8362
3d ago
Research suggests that excessive inflammation inside the brain may play a key role in the death of dopamine-producing brain cells in Parkinson's. There is a study to see if the drug (PXS-4728) can reduce this inflammation and delay damage to these cells. https://www.parkinsons.org.uk/news/trial-looking-delay-onset-parkinsons-begins What do you think of this? submitted by /u/Serious-Ad-8362 [visit reddit] [comments ..read more
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Scuba Diving
Reddit - Parkinson's Disease
by /u/J58592958
3d ago
Hi there! Anyone who has PD and does scuba diving? How’s the experience? submitted by /u/J58592958 [visit reddit] [comments ..read more
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Who’s out there dealing with severe sundowners related to advanced PD? Or partner/relative of PD patient dealing with it?
Reddit - Parkinson's Disease
by /u/SeanUndersun
3d ago
I’m asking in regard to my 77 y.o. father who struggles pretty bad especially with this. Curious how, or if, there’s any tips or pointers for relief and any chance at more sleep? I’m sure there isn’t an easy solution to this. Just curious how you guys try to handle this. Thanks. submitted by /u/SeanUndersun [visit reddit] [comments ..read more
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