New Year Update
Nathan's Journey
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3y ago
Hey everyone! 2018 has started out well for our family. I haven't updated the blog since December (and we were skeptical about the outcome of his MRI, but luckily everything looked good). I'm glad to report that everyone is doing well, at the moment. Yay! Nathan is still off all treatment, and he is feeling the best that he has since his diagnosis in 2015. He's been running a lot lately - something he has missed so much since last spring. His 2nd craniotomy (June 2017) really knocked him off his feet - literally - and he is just now getting his running rhythm back. He has also been able to g ..read more
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Update
Nathan's Journey
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3y ago
Hey everyone, So we went down to UAB on Sunday for Nathan to get his MRI to see what was causing his issues...we are happy to report that there was neither regrowth nor fluid in his tumor cavity! Praise the Lord! Swelling was the root of the problem... although Nathan still feels terrible and is still having all of the issues that I mentioned in the previous post, this is the best case scenario for him to have his problems from. Dr. Nabors said that the swelling is more than likely from being off steroids for almost a month and not having an Avastin treatment since last month. Luckily, he i ..read more
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A long and overdue update!
Nathan's Journey
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3y ago
Hi everyone, I know it’s been an extremely long time since we’ve updated the blog, and I apologize! Here is what has been going on with us since I last updated: So far, Nathan’s treatment in Chattanooga is going alright… For those of you who do not remember what his new treatment is since his last craniotomy in June… Nathan goes every three weeks to Erlanger to get an infusion of Avastin. He also takes a form of chemo called CCNU, or Lomustine, every 6 weeks. Avastin will help with the swelling in Nathan's brain. It has helped him get off of his high dose of steroids which was very appealin ..read more
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Our Next Step
Nathan's Journey
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3y ago
Hello! I'm so sorry that I haven't updated the blog in so long...things have been a bit hectic around here. I'll try to catch everyone up to speed. Exactly a month ago, on June 14th, Nathan had his 2nd craniotomy at Vanderbilt to remove the fluid that had formed in his tumor cavity. The doctors also wanted to biopsy the potential regrowth that showed on his most recent MRI. The fluid was caused by a cyst (that they believed was caused by the tumor/regrowth), and it was creating so much pressure on his brain that it very quickly could've turned into a life threatening issue, if not dealt with ..read more
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2nd Craniotomy
Nathan's Journey
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3y ago
Hey everyone, Here is the most recent update on Nathan... Over the past few weeks (pretty much since the Boston Marathon), Nathan's quality of life has greatly decreased. He has been suffering from aphasia, weakness on the right side of his body, confusion, and seizures. He has had to stop running because his right side of his body is too weak. We got a Peloton Bike, and he while he has thoroughly enjoyed it, he had a partial seizure on it the other day. The main cause of all of his issues is fluid. The fluid is in a cyst that's filling up and has no where to drain. Nathan had an Ommaya Rese ..read more
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Midline Shift Update
Nathan's Journey
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3y ago
Hello! I wrote this email to family and friends about a week ago -- but wanted to keep everyone updated on what's going on with Nathan... We came down to UAB yesterday (3/22) for his regular infusion. On the way down, Nathan was complaining about tremors in his hands and face. He couldn't smile or close his eyes without his face trembling, but he felt normal-- other than that. When we got to UAB yesterday, Nathan told Dr. Saleh (clinical trial doctor) about these symptoms. He was a little concerned, so he suggested we have an MRI done today to see if there was fluid buildup causing these trem ..read more
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The Chattanooga Marathon and Paris
Nathan's Journey
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3y ago
Hey everyone! It's Nathan. A lot has happened since we last wrote. All good stuff, though! First of all, let's discuss the Chattanooga Marathon debut... The Chattanooga Marathon We were feeling great after mile 20. I was feeling a little rough, but I was going at a pace where I could qualify for Boston—by we, I mean Alan Outlaw (owner of Fast Break Athletics) and I, who I can't say enough good things about. A guy that can run a 2:40:00 marathon knowing when to push and when not to is a great man in my book. Alan also helped coach me through the process, which was difficult given my stubborn ..read more
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Update On Nate
Nathan's Journey
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3y ago
Hey everyone, I know it’s been a while since we’ve updated the blog. From Christmas with the stomach bug to finding out that we have to replace our field lines in our backyard, we've had a stressful and busy two months...to say the least. I’ll back up and update you all... I think Nathan updated the blog about our trip out to San Fransisco in early December. We went out there for Nathan to run in a 50 mile (!!!) trail race through Muir Woods. Around mile 19, Nathan had two partial seizures and had to drop out of the race. When we came back to UAB for his usual infusion that he has every two ..read more
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Surgery to drain fluid and have a biopsy
Nathan's Journey
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3y ago
For those of you following Nathan's journey, here is a post that I made on Facebook about 2 weeks ago. It just slipped my mind to post this to the blog! I'm so sorry!  Here is the latest from Nathan's scans this week.... (week of 12-13-16) So, everything looked good with regard to the tumor. There isn't any regrowth and it looks the same - Praise the Lord! However - there is an issue with fluid in his tumor cavity... Let me back up and explain: After his surgery at Vanderbilt, the baseball-sized cavity in his brain filled with fluid over time. When you have some sort of surgery to rem ..read more
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A Year of Running
Nathan's Journey
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3y ago
It was end of November 2015 when I walked into the office for one of my half days and Adam Shearer was pitching the idea of getting a group of Bellhops employees to run in the Chattanooga Half Marathon. I said I was in! I had no idea I would be embarking on a journey that God would use to inspire so many people. He is always one step ahead of us. It is almost funny when I look back at my life and you can just see God’s fingerprints all over it. If I hadn’t walked in at that exact second, I may have not even started running. About a year ago today (December 2, 2015), I posted my first Strava ..read more
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