Melissa's Obituary
Barr's Battle Brain Cancer!
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3y ago
As most of you who follow this blog already know, my wife Melissa Lynn Barr passed away from her struggle with Brain Cancer this past Sunday. HER OBITUARY I will find the words for a proper closing post when I can.   ..read more
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Update - November 6th
Barr's Battle Brain Cancer!
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3y ago
 It has been a few weeks since my last post.  There was a gradual decline over the past couple weeks, with more sleeping, less eating, and some continued loss in cognitive ability.  There has been a considerable decline in the past 24 hrs, though.  She can't really stand or walk safely anymore.  I am not sure what this means, as far as time line or anything.  They did warn me that when she starts to decline, it will likely be pretty rapid.  All prayers and positive vibes are dearly needed and welcomed.   ..read more
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Update
Barr's Battle Brain Cancer!
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3y ago
I want to thank everyone who donated to the GoFundMe my friend started or who sent direct donations.  I can't even explain to you how much it means.  I hate that we are even in this position and anyone who knows me knows I am usually the "helper" and am not good as asking for help.  It came in at just the nick of time.  I also want to thank our volunteer helper, April.  She has been amazing and I appreciate her more then I can express in words.    Things are progressing, I suppose.  She is sleeping more and when she is up, her care is a lot and she is st ..read more
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Update - 2 Weeks Down
Barr's Battle Brain Cancer!
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3y ago
 I am sorry that I have not kept folks more up-to-date on the past couple weeks, but health wise, no news is good news.  Her condition has degraded some mentally, but she is still smiling, eating, and enjoying all the spoiling going on. We recently received some great vibes, answered prayers, and an awesome gift!   Great Vibes...too many to mention.  Thank you for everyone reaching out, the cards, the calls, the boxes...you have no idea how much they mean to Melissa, me and Michael. Answered Prayers...our gofundme started it's first pay-out.  Cancer and just tr ..read more
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Stepping Up, Thank You!
Barr's Battle Brain Cancer!
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3y ago
 I just wanted to post a huge thank you for all the folks that have reached out either to help, give best wished/prayers, and just share their love.  The volunteers, donations, prayers, well wishes...they are all just awesome and heartwarming. I would thank every one of you individually on this post but I would be afraid I would leave someone out. Crater Community Hospice has been amazing, too. As much support and help as come in already, unfortunately it never seems like enough with brain cancer (or any cancer, I would imagine).   Click HERE to reach a GoFundMe started to ..read more
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Help Wanted!
Barr's Battle Brain Cancer!
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3y ago
 Medicare denied the appeal for a 24hr care facility and even for home healthcare nursing...leaving her care pretty much entirely up to me.  We can not afford to pay for a sitter, a nursing home facility, or in-home healthcare.  Hospice care is engaged but they really don't do nears as much as I expected. I sent in an application for Medicaid weeks ago, but they have weeks still before it will even be processed...and based on the luck I have had recently, I doubt that gets approved either. So I need help! Help with someone to sit with her while I work. Help finding resources ..read more
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What Really Matters
Barr's Battle Brain Cancer!
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3y ago
 Like anyone dealing with Cancer, I have done all kinds of research.  Recently I read up on a topic I had hope to avoid for a long time...end of life care.  The very first thing I read was. "Be brave enough to have the conversation on what really matters."  Wow...that's some deep shit.   I have spoken with her doctors about her current condition.  They said though treatments might make her MRI's look better but she will never regain the cognitive functions she has lost.  The treatment side effects, how they are administered, and the amount of effort they ..read more
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Inconvenient Cancer and Medicaid Loopholes
Barr's Battle Brain Cancer!
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3y ago
 If you ever want to know just how bad our medical insurance system in this country is, just get cancer as a young adult.  Get sick in a unconventional way with inconvenient timing and need any sort of specialized care...you will quickly discover is Medicaid and just about any health insurance policy is laden with loopholes and sneaky ways to deny coverage for anything that doesn't fit their narrow minded criteria.  Meanwhile, a young adult and her family are fighting for their damn life over here.  Doesn't matter how hard you work or how successful you are when cancer come ..read more
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Non-Update Update
Barr's Battle Brain Cancer!
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3y ago
 I wanted to have an good update posted days ago, but poor communications from her doctors at VCU Medical Center has delayed having any new information to share, health wise.  I get calls from the discharge nurse all the time, discussing our discharge plan, but until we have a care plan in place or they give me any of the information that is needed to make these decisions, we are at an impasse. When I know more, you will know more...just know, I am full on giving those doctors hell today ..read more
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Biopsy Results In!
Barr's Battle Brain Cancer!
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3y ago
 We got the results of Melissa's recent biopsy and they are not good.  She now has a grade 4 glioblastoma mutliforme...a terminal diagnosis.  ? Still awaiting the specifics for a treatment plan or if treatment will even be an option.  As soon as a decision is made on treatment or what facility she is going to be staying in, I will post it on the blog here. Cancer is a ruthless bitch.  It just takes and takes.  I wouldn't wish it on my worst enemy.  Tell the ones you love that you love them all the time.  Make those moments, because in a blink of an eye ..read more
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