Michael’s Journey: From retinoblastoma to fitness expert
Childhood Eye Cancer Trust Blog
by Beth Lardner
2d ago
For World Retinoblastoma Week, we spoke to Michael about his journey from the childhood eye cancer, enucleation and beyond! Background History and Diagnosis My name is Ayokunle Michael Omotayo (Michael), and I was born on 1st October 1992 in Kings College Hospital, South East London. I was diagnosed with retinoblastoma in my left eye in1995 when I was 2 ½ years old. My mum noticed a shining light in my left eye and said I wasn’t eating well, frequently vomiting, was generally looking unwell and losing a lot of weight. She took me to the GP several times to and to several opticians who didn’t s ..read more
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World Retinoblastoma Awareness Week 2024
Childhood Eye Cancer Trust Blog
by Kat Higgs
2d ago
It’s World Retinoblastoma Awareness Week from 12th May – 18th May 2024 – keep an eye out on our blog for our next awareness story. There are a few different ways that you can help raise awareness and funds to support families affected by retinoblastoma during this important week. Whether you’re organising an event or simply sharing one of our social media posts, we are incredibly grateful to each and every one of you for your support – thank you. Spreading the word We’ll be posting via our Facebook, Instagram and Twitter channels throughout World Retinoblastoma Awareness Week. Please ..read more
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Beyond Rb event: Kelham Island Museum
Childhood Eye Cancer Trust Blog
by Beth Lardner
1w ago
CHECT Head of Support Petra Maxwell and Fundraising Manager Priyanka Kotecha recently attended one of our Beyond Rb meet-ups. Here, they discuss how the day went: Our Beyond Rb meet-up in February took place on a beautiful, sunny day at the Kelham Island Museum in Sheffield. We kicked off the day with a private tour of the museum, seeing how the steel trade had shaped Sheffield over the years, and learning some bizarre facts along the way! We even got to hold a hand-grenade, and a surprisingly heavy piece of shrapnel. We then had an opportunity to handle some of the more unusual artefacts from ..read more
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Amazing Maisy
Childhood Eye Cancer Trust Blog
by Beth Lardner
2w ago
We spoke to author Kay Lewis about her first book, Amazing Maisy. The *book is a reflection back to when Kay’s daughter Maisy was diagnosed with retinoblastoma, and what life is like now for Maisy. Can you tell us about what prompted you to write a book? The reason I wrote the book at first was mainly for Maisy to read so she could understand everything she went through. However, the more details I added to the book the more I realised that actually it would possibly help other families going through the same or similar journey. What process did you undertake to write the book? I have ne ..read more
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In memorial: Tony Dollery
Childhood Eye Cancer Trust Blog
by Beth Lardner
3w ago
Shaun discusses his late father Tony, who raised over £6000 for CHECT by making and selling hedgehogs and bird boxes. All of us at CHECT pass on our best wishes to Tony’s family, as we fondly remember Tony for his kind generosity.  Cancer is tough but the people who battle it are even tougher and our family has had its fair share of battles with cancer. Our son Karl was diagnosed with bilateral retinoblastoma in1999, age 3 months and had his left eye enucleated and went through cryotherapy and laser treatment to his right eye at Birmingham’s Children’s Hospital. 25 years later his grandfa ..read more
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Frankie’s artificial eye fitting
Childhood Eye Cancer Trust Blog
by Beth Lardner
3w ago
We spoke to Robyn, whose daughter Frankie recently had a new artificial eye fitted. She tells us about the experience: “Last year on a regular check up with the National Artificial Eye Service, Frankie had really progressed quickly at taking her eye out for a clean that there was a lot of spare time left in the appointment. Frankie’s’ Ocularist had some new equipment that she hadn’t used on any child at that time and thought that she would give it a try on Frankie. It was a camera that took close-up photos of the seeing eye to capture the true colours and details within the eye.  The ..read more
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Jaxon’s football experience
Childhood Eye Cancer Trust Blog
by Beth Lardner
1M ago
With thanks to the Free Kicks Foundation, CHECT were able to send Jaxon – who had retinoblastoma – and his parents to go and watch the Liverpool vs. Chelsea Carabao Cup Final on Sunday. Jaxon was delighted to see his team win 1-0, with his mum adding that the seats were amazing and they all loved every minute. https://chect.org.uk/wp-content/uploads/2024/02/VID-20240226-WA0012.mp4 We’d love to know what you have been up to! If you’d like to share some news with us, please email isabella.greenwood@chect.org.uk The post Jaxon’s football experience first appeared on Childhood Eye Cancer Trust ..read more
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World Book Day: How books helped me when I was in hospital
Childhood Eye Cancer Trust Blog
by Beth Lardner
1M ago
We spoke to Emily Ann Davison – the author behind ‘The Blue Umbrella’ and ‘Every Bunny is a Yoga Bunny’ about the power of reading for World Book Day. World Book Day is always such an exciting time of year where people come together to celebrate the magic of books and stories, and it’s especially exciting for me as a children’s author! Thank you so much to CHECT for asking me to write another blog post for it this year. As a child, I had bilateral retinoblastoma and my Mum used to read lots of stories to me to keep me occupied during hospital visits and on the long journeys down to hospital ..read more
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 ”I spotted cancer in my baby’s eye as I cooked dinner” 
Childhood Eye Cancer Trust Blog
by Beth Lardner
1M ago
A mum from Gillingham in Kent is urging other parents to look out for the tell-tale signs of eye cancer this Rare Disease Day, after their three-month-old son was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of six.        Mum Sarah was cooking Shepherd’s Pie when she spotted an unusual glow in her son Thomas’ eye. Sarah said, “My daughter was holding Thomas in her arms as I was cooking, and I noticed his eye looked like a cat’s eye. I couldn’t see it again so then I wondered whether it was just the lighting. It was playing on my mind, so ..read more
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The Ffion Miles Bursary winner: Rosie
Childhood Eye Cancer Trust Blog
by Beth Lardner
2M ago
Rosie was one of two winners chosen to be the receiver of the Ffion Miles Music Bursary for 2023, in memory of the late Ffion Miles. Ffion was not only known for her love of music, but her passion towards helping those who had retinoblastoma (Rb) and/or who had a visual impairment. Rosie has used the funding to buy a piano – and has been using it to play wonderful music! Rosie said, “‘I was very pleased when I found out, and have really enjoyed playing on the new piano the money went towards.”. Mum Emily added, “We were so happy for Rosie when we found out about the award. We put th ..read more
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