19…. Where has the time gone?
Autism Mumma
by Jeannette
2y ago
Goodness me, our T is 19 today. We are so proud of what he’s achieved and how he’s coped with the disruption of the last couple of years. His A levels were disrupted by Covid, as were so many pupils. He wanted the chance to sit the exams, craved it even. To try and prove that teacher wrong who’d told him and phoned me on the FIRST day of sixth form to say that she didn’t think he would do well on the course. To be told that on the first day dented his confidence, who wouldn’t have been affected by that and it set the scene for the teacher-pupil relationship that followed, she didn’t understand ..read more
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S is for.. you!
Autism Mumma
by Jeannette
2y ago
You are loved, you are many things and so are the initials in your name. S….You are: My SOULMATE, quite often we’ll finish each other’s sentences, phone each other at the same time and know exactly what one another is thinking. You’re also SILLY, not in a bad way but a funny way, humour has got us through the last couple of extremely challenging years and will continue to do so. We can go from a “grrr, I’m really not happy with you right now” to a “I am going to burst with laughter in a minute” and back again, just as fast, but hey, that’s how we roll. You’re also SWEET, according to D and yo ..read more
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Crafting helps – Day 87
Autism Mumma
by Jeannette
2y ago
The one disadvantage to D having her weekly flute lesson on a Saturday is that her weekend is shorter and, when her anxieties start about the return to school on a Monday, it gets even shorter. Poor D, when she gets anxious over school, there’s nothing I can sure to re-assure her, skipping up and down our garden path helps, she skips continually back and forth, her face emotionless and eyes fixed forward. Hubbie and I were thinking over lockdown…D started at her SN school just before her 6th birthday, she’ll be 17 this year. That’s a long time, a lifetime even, for her to get used to her schoo ..read more
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One Year On – 26/3/2021
Autism Mumma
by Jeannette
2y ago
26th March…I’ve been dreading this day, this anniversary of a year since I last saw my father-in-law, the day he was moved forcibly into a care home. He’d been in hospital for a month and, as it became more and more apparent that he couldn’t go home and also that the first coronavirus wave was imminent, the hospital made the decision that anyone who could be classed as “medically fit” to he discharged would be and those who couldn’t go home, would be heading for a care home. One that had vacancies, one in which we had no say, so great was the need for beds to be released. We don’t blame the ho ..read more
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Autism With Lola – A Special Offer
Autism Mumma
by Jeannette
2y ago
When D was diagnosed with autism at age 4.5, I had an immense need to find out as much as I could about autism, I still do, I don’t think I will ever stop learning. It felt quite a lonely time, I hadn’t joined social media and really really wanted to find other parents/carers to speak to them as I instinctively felt that their experiences would help me and D by being around people who “got” the challenges and share the highlights that our children bring. A few years (and grey hairs!) later, I joined Twitter and was delighted to discover that, by using hashtags, I could search for parents/carer ..read more
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An Overview of Phonological Errors
Autism Mumma
by Jeannette
2y ago
D and T are now 15 and nearly 17 years old respectively, one of the aspects that made me wonder “could it be autism” was their speech – or lack of it – in their early years. Both had stilted speech, used echolalia and were not able to express themselves verbally when overwhelmed. This is sometimes still an issue when stressed. I have been asked to share this infographic and I’ve found it very interesting. Speech delays and disorders are more common in children with autism and with autism spectrum disorders. Yet phonological errors and phonetic errors are common in children with other condition ..read more
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I’m proud to be the Mumma to an Autistic Daughter #autism #autisticpride
Autism Mumma
by Jeannette
2y ago
When you think of Autism, what comes into your mind first? Rainman as portrayed by Dustin Hoffman or a child flapping their hands around, struggling to communicate? Both have autism, both are individual. Because that’s what autism is, an umbrella name under a broad spectrum. Some individuals are “high functioning”, with an amazing ability to remember facts and statistics, others have what would be described as “classic” autism with the three autistic traits (OCD, stilted speech and a lack of awareness of social skills) and then there is the severe end of the spectrum with the little or no spee ..read more
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Anxiety, PTSD and Me
Autism Mumma
by Jeannette
2y ago
Anxiety sucks. A little bit of day-to-day anxiety is natural, the “oh sh*t, I’m going to be late…” or something similar, but what if that anxiety stays with you all day, burbling away like a saucepan full of water, threatening to over-boil? What if anxieties prevent you from doing activities that you’d previously enjoyed, what if you deliberately avoid situations because you’re worried about what might happen, even though it won’t. An example of this is, we have to cross a bridge over an “A” road to get to the nearest train station, at my worst I would be going over it thinking “what if it col ..read more
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Ticking the box in my autistic daughter’s school (just for the sake of it!!)
Autism Mumma
by Jeannette
2y ago
I had hoped, with D being in an SN school, that the box-ticking wouldn’t be so prevalent, that “need” to “tick” just for the sake of it, irrespective of the angst it may cause. (the image above is me going a bit “Daily Fail”, because we all know what a tick looks like!) I know I haven’t blogged for ages, it feels like there’s so much going on that I need a map to navigate through all the thoughts in my head, but this that follows, I just had to… So, every term, we have an IEP meeting at D’s school, under the umbrella of Parents Evening and progress is checked against tasks set, sometimes they ..read more
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Getting back into it – #WellbeingWednesday
Autism Mumma
by Jeannette
2y ago
I haven’t written one of these for a while, have I? Truth be known, events of last year took their toll on me emotionally (if you don’t know, sepsis in November and the prospect of another foot op this year) and my confidence has nose-dived, I’m not an over-sharer anyway, I’d rather stay silent, feeling that I don’t have any input. Which is silly, really, because I hoped by starting blogging I might reach out to other parents in a similar situation, juggling continuously and hoping a proverbial ball doesn’t drop! So, what’s been going on? Well, our lovely D is suffering a “bit” with anxiety, m ..read more
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