NIH ME/CFS deep phenotyping study – summaries and infographics
ME Research UK
by Stewart
1d ago
The NIH deep phenotyping study, using a multidisciplinary approach, demonstrates biological differences in people with ME/CFS. Nevertheless, there are valid concerns, such as the small sample size and lack of focus on post-exertional malaise (PEM)  – the cardinal feature of ME/CFS. Also, clearer delineation of direct findings from interpretations is needed. Hopefully, future study phases ..read more
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ME Research UK – March 2024 e-newsletter
ME Research UK
by Stewart
1d ago
Additional findings from ME Research UK-funded studies Dr Leighton Barnden and his team at Griffith University have recently published more findings from their ME Research UK-funded study using advanced imaging techniques to look at brain abnormalities in people with ME/CFS. Dr Barnden explains more about his research in a short video. Dr Sarah Annesley and ..read more
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Reflections on the NIH conference: Part 3. Treatment targets
ME Research UK
by David
1d ago
In December 2023, ME Research UK attended a two-day conference organised by the National Institutes of Health (NIH) and titled “Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID”. Our reflections on the topics discussed at the conference are presented in this three-part series of articles. 1. Overview | 2. Research topics | 3 ..read more
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Reflections on the NIH conference: Part 2. Research topics
ME Research UK
by David
1d ago
In December 2023, ME Research UK attended a two-day conference organised by the National Institutes of Health (NIH) and titled “Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID”. Our reflections on the topics discussed at the conference are presented in this three-part series of articles. 1. Overview | 2. Research topics | 3 ..read more
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Reflections on the NIH conference: Part 1. Overview
ME Research UK
by David
1d ago
In December 2023, ME Research UK attended a two-day conference organised by the National Institutes of Health (NIH) and titled “Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID”. Our reflections on the topics discussed at the conference are presented in this three-part series of articles. 1. Overview | 2. Research topics | 3 ..read more
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Shortcomings in the Management of Children and Young people with Suspected Severe ME/CFS
ME Research UK
by Stewart
1d ago
Severe ME/CFS is an under-researched area, and even more so in relation to children and young people. Yet it has a profound impact on quality of life, and as described in a 2021 article  by Dr Faith Newton – “Very seriously affected children are often too sick for doctor’s office visits, let alone school attendance ..read more
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Unravelling shared mechanisms
ME Research UK
by David
3d ago
ME Research UK is currently supporting Dr Sarah Annesley at La Trobe University for two projects looking at mitochondrial abnormalities in ME/CFS (read more here and here). Dr Annesley and colleagues also recently published a review article discussing many of the pathological mechanisms that could be shared between ME/CFS and long COVID, and whether insights ..read more
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Exercise Testing in ME/CFS
ME Research UK
by Stewart
3d ago
ME/CFS is a complex and debilitating condition characterised by profound fatigue, post-exertional malaise (PEM), cognitive difficulties, sleep dysfunction and other symptoms. Assessing PEM, the cardinal feature of ME/CFS, is crucial for gaining a deeper understanding of the condition. The primary method for assessing PEM is through cardiopulmonary exercise testing (CPET). Purpose of CPET CPET is ..read more
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ME/CFS and Epstein-Barr Virus (EBV) – some facts
ME Research UK
by Stewart
1w ago
What is Epstein-Barr Virus (EBV) and how is it related to ME/CFS? Many individuals with ME/CFS state that an episode of infectious mononucleosis, i.e. glandular fever, preceded the development of their ME/CFS. Hence, it is no surprise that Epstein-Barr virus (EBV), the virus that causes infectious mononucleosis, has generated much interest in ME/CFS research. How ..read more
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NIH ME/CFS Deep Phenotyping Study: Part 4. Discussion
ME Research UK
by David
1w ago
The US National Institutes of Health (NIH) intramural study on ME/CFS is a three-phase initiative to explore post-infectious ME/CFS in depth, and potentially to identify biomarkers and find treatments. The study was launched in 2016, and the first part, involving more than 70 researchers from a wide range of specialties, has just been completed after ..read more
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