Cecostomy Tubes R Us
The Chronicles of Ellie Bellie Bear
by Anna Theurer
1y ago
Here we are - two posts in 30 days! It's scandalous, I tell you!  Seriously though, I bet you all thought that I abandoned ship and would revert back to neglecting this blog.  Well. . . ahem, *whispers* I thought about it, but then I figured I'd present you with more random medical stuff, some pics, and the usual Ellie Bear antics.  Yes, antics on steroids because you know, hormones and puberty. If you've been following The Chronicles of Ellie Bellie Bear for a while, you know that I love to get into all things medical.  I am a former pediatric nurse practitioner turned ma ..read more
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A mask for kids with Down syndrome
The Chronicles of Ellie Bellie Bear
by Anna Theurer
4y ago
Do you hear crickets?  Yes, we are here!  We are alive!  We are safe and healthy!  We haven't been inside a restaurant or store since mid-March due to the pandemic and due to the fact that Ellie has immunology issues along with asthma and other underlying health issues.  The CVS drive thru is considered a vacation at this point and I long for the days when I can go to Target and grab coffee with a friend.  True, I have neglected this poor blog for *gasp* 7 months and this is just a quick post about face masks.  I had shared a pic of Ellie modeling her fancy ..read more
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Happy Holidays
The Chronicles of Ellie Bellie Bear
by Anna Theurer
4y ago
May you all have a wonderful, safe, healthy, and relaxing Holiday season full of laughter, love, and copious amounts of coffee ..read more
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I have no idea what I am doing: fostering independence
The Chronicles of Ellie Bellie Bear
by Anna Theurer
4y ago
I really wish that parenthood came with an instruction manual.  Only modify that manual to be about special needs parenting and have it contain the knowledge and wisdom of a parents, teachers, psychiatrists, occupational therapists, speech therapists, patient advocates, and well, everyone! All children are unique individuals with their own strengths and struggles so really you cannot lump them all into one group, but I do wish that I had some guidance.  I honestly have no idea what I am doing here when it comes to teaching Ellie life skills.  Am I doing too much for her and holding her ba ..read more
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Everybody poops. . . or not
The Chronicles of Ellie Bellie Bear
by Anna Theurer
4y ago
Welcome to another episode of "Why Won't My Child Poop?"  Today's cast of characters feature Ellie Bear, a distraught Mama Bear, clueless ER staff, members of the Comprehensive Care Clinic, and a jolly x-ray technician. Want to know why this little Turkey is smiling?  This is outside Dell Children's Medical Center.  She was there for her appt with Dr. Simon.  Elli is in luv with him.  First, a little background: I am unfortunately known among many parenting groups as "the poop guru" (seriously who wants that title as their claim to fame?) as I can pretty much get any child to poop. . . ex ..read more
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A message from The Ellie Bear
The Chronicles of Ellie Bellie Bear
by Anna Theurer
4y ago
I am coming to  get you! Next Month is Down Syndrome Awareness month and I hope to have a special post for y'all.  I also seem to have 3 unpublished blog posts that I never got around to finishing.  Just a lot of thoughts rolling around in my head and I'm having trouble getting them to paper/computer as well as the usual medical nonsense that Ellie must endure. *notice my husband's face in that last pic?  Yep, he wasn't entertained by our antics ..read more
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Happy 10th Birthday, Ellie Bear!
The Chronicles of Ellie Bellie Bear
by Anna Theurer
4y ago
Ten Years ago today. . . . Ellie Marie Theurer 6 lb 10 oz 19.25 inches Nickname: Ellie Bear; Chunky Chicken Favorite past-time: sleeping  Favorite food: formula Favorite person: Daddy  Favorite Book: Snuggle Puppy by Sandra Boyton Favorite Song: Personal Penguin (from a book by Sandra Boyton) Favorite TV show: Criminal Minds. . . wait, that was my favorite show to watch while I was feeding her Today . . . Age 10 Ellie Marie Theurer Nicknames:  Ellie Bear, Princess Twinkletoes, Turkey Bear, Stinker Butt, Miss Sassy-Pants Grade in school: 4th grade Favorite food: Nutella ..read more
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A metalhead and a thief
The Chronicles of Ellie Bellie Bear
by Anna Theurer
5y ago
It is time for an Ellie-ism post!  The other week I was regaling my therapist with tales of Ellie's shenanigans.  As she sat there laughing and I was tearing up from the sheer craziness of it all, I realized that I had my next blog post.  Given the crap going on in our lives and the emotional instability that The Bear is currently enduring, I realized that it is time to embrace the humor in these antics. Definitely not auditioning for The Voice *Don't Cry by Guns N Roses playing in background* along with the sounds of a dying baby seagull. Drew: What is going on?  What is wrong? Me:*tri ..read more
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CAMP Camp - a fun experience for those with disabilities and their siblings
The Chronicles of Ellie Bellie Bear
by Anna Theurer
5y ago
It has been  a wild and crazy summer for us.  One full of fun, a bunch of doctors' appointment for me, swimming, and camp.  Last year, Ellie attended an overnight camp for children with special needs.  To say I was anxious was an understatement.  Would she be homesick?  Could they handle her medical issues?  I need not have worried, because last year, when we went to pick her up - the cheeky little monkey ran up to Andrew and I to say "hi" and then promptly told us "bye bye" while running away.  This year, however, I was really looking forward to that week long camp - for both myself (I get a ..read more
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